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Father and Daughter with ITP

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8 years 6 months ago #61349 by Moe1327
Father and Daughter with ITP was created by Moe1327
I was official diagnosed with Immune TP in July. My father was recently admitted to hospital with chest pains and his blood test came back with very low platelets (20). He is now being treated with predisone and IVIG infusions. How common is it to have family members have this, I was told that it is not hereditary, but this seems very strange to me?? Help.

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  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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8 years 6 months ago #61357 by Sandi
Replied by Sandi on topic Father and Daughter with ITP
My sister and I have both had it. There are types of familial ITP, but if that is not the case, it is probably a coincidence that you both ended up with the same autoimmune disorder. Autoimmune disorders can run in families, but usually, everyone has different ones. How old is your father? Has he started any new medications lately?

Here is some info on familial ITP:

pdsa.org/about-itp/and-families.html

pdsa.org/resources/other-platelet-disorders.html

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8 years 6 months ago #61380 by tj1989
Replied by tj1989 on topic Father and Daughter with ITP
Is it possible there is an environment issue? Do you live in same place?

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  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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8 years 6 months ago #61382 by Sandi
Replied by Sandi on topic Father and Daughter with ITP
My sister was diagnosed about 16 years before I was, so it probably wasn't environmental in our case. We lived in different places. She went into remission after a year (she was 16). I went into remission after 8 years (I was about 36).

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8 years 6 months ago #61393 by tj1989
Replied by tj1989 on topic Father and Daughter with ITP
Sandi, I mean Moe1327 and her father. Their diagnoses are so close, so I think it is possible that they are related to environment, or same virus/food/etc.

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  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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8 years 6 months ago #61398 by Sandi
Replied by Sandi on topic Father and Daughter with ITP
It's possible, but we don't know what their individual situations are.

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Platelet Disorder Support Association

Platelet Disorder Support Association
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The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.