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Eye Sight

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8 years 7 months ago #60610 by Moe1327
Eye Sight was created by Moe1327
I have chronic ITP, but just recently been treated. I have trouble with eye sight and seeing bubbles and seems like someone is next to me. I did see a retinal specialist and was told this is a result from ITP. Anyone else have this and do you just have to live with it? I go to back to the eye doctor at end of month and don't know really what questions to ask.
Any advise????

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  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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8 years 7 months ago #60611 by Sandi
Replied by Sandi on topic Eye Sight
That is not a result of ITP. Have you had any bleeding in your eye? It can be a side effect of steroids....have you been on those lately?

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8 years 7 months ago #60613 by Moe1327
Replied by Moe1327 on topic Eye Sight
No steroids, I've been receiving IVIG treatments. I was told that the bleeding behind eyes is a result of the ITP. I have had low platelet count for years, but not treated for it.

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  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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8 years 7 months ago #60614 by Sandi
Replied by Sandi on topic Eye Sight
Bleeding behind the eye could probably cause problems with eye sight, but that is rare. That has never been a discussion here. People have, on occasion, had Subconjunctival Hemorrhages in their eye but not very often and it did not damage eyesight. Did you have any obvious bleeding symptoms?

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8 years 6 months ago #61028 by Moe1327
Replied by Moe1327 on topic Eye Sight
I have bubbles that I see and sometimes it seems like something is next to me. Went to retinal specialist and was told I have bleeds in retina (sticky blood) and that is what is affecting the eyes. I do have to go now monthly to see the retina specialist. He said that as my platelets go up vision should improve, but if they go down it can reoccur.

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  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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8 years 6 months ago #61030 by Sandi
Replied by Sandi on topic Eye Sight
Hmmm. Seems like 'bleeds' and 'sticky blood' is a contradiction. Sticky blood usually refers to clotting. What is your count now?

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Platelet Disorder Support Association

Platelet Disorder Support Association
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The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.