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Terminology-From ITP to PIT or SIT

  • mrsb04
  • Topic Author
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  • ITP since 2014. Retired nurse. My belief is empower patients to be involved as much as possible in their care. Read, read, read & ALWAYS question medics about the evidence base they use.
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9 years 1 week ago #58894 by mrsb04
Terminology-From ITP to PIT or SIT was created by mrsb04
Having just read Rob 16's new topic ( pdsa.org/discussion-group/7-treatment-general/29651-romiplostim-in-splenectomized-patients.html#58884 ) I searched google scholar for 'Primary Immune Thrombocytopenia'.
The first hit was written 9 years ago; Standardisation of terminology, definitions and outcome criteria in immune thrombocytopenic purpura of adults and children: report from an international working group accessed at www.bloodjournal.org/content/113/11/2386?ijkey=4a51fa2a0a554e36643f499ea1f8de7af514d483&keytype2=tf_ipsecsha

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9 years 1 week ago #58904 by Rob16
Replied by Rob16 on topic Terminology-From ITP to PIT or SIT
Anne,

The article you cited mentions 'ITP' 79 times, and 'primary immune thrombocytopenia' only indirectly. However, your point is well-taken, that the expression is not entirely new. What is new is a trend among some writers toward leaving off the designation 'ITP', which runs counter to the guidelines in the article you cited:

The acronym ITP (now proposed to stand for immune thrombocytopenia) was preserved because of its widespread and time-honored use and taking into account its utility for literature searches.

Because some writers are leaving out the 'ITP' designation, I have been missing some important articles from my literature searches.
Therefore, I am no longer searching only on 'ITP', but also, on 'immune thrombcytopenia".

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  • mrsb04
  • Topic Author
  • Offline
  • ITP since 2014. Retired nurse. My belief is empower patients to be involved as much as possible in their care. Read, read, read & ALWAYS question medics about the evidence base they use.
More
9 years 1 week ago - 9 years 1 week ago #58925 by mrsb04
Replied by mrsb04 on topic Terminology-From ITP to PIT or SIT
Rob I hope stating the age of the article didn't cause you offence. As you say nomenclature changing affects literature searching , which I think is dangerous as it can be detrimental to expanding our knowledge.



.

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9 years 1 week ago #58929 by Rob16
Replied by Rob16 on topic Terminology-From ITP to PIT or SIT
Nope, no offense whatsoever. I greatly value your participation in this forum.
The following user(s) said Thank You: mrsb04

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