Remember Me     Forgot Login?   Sign up   •  Web site Help & Info

!!! DISCUSSION GROUP RULES !!!

1. You must be a registered website user in order to post and comment. Guests may read only.
2. Be kind and helpful, not rude and cynical.
3. Don't advertise or promote anything. You will be banned from the group.
4. Report problems to the moderators. THANK YOU!

Surgery Rejection

More
9 years 1 month ago #58468 by Dmspence
Surgery Rejection was created by Dmspence
I went to an orthopedic surgeon for a consult regarding treatment of disk disease. He denied treatment and referred me to a pain specialist. I met with the pain doctor and he refused to inject the steroid into effected area due to the risks associated with hemorrhaging (ITP). I'm frustrated with the Orthopedic surgeon for not talking strait with me and telling me he choose not to treat due to the ITP.

Now I am concerned I will be refused necessary treatment for the rest of my life due to their fear of me hemorrhaging.

Please Log in or Create an account to join the conversation.

  • Sandi
  • Offline
  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
More
9 years 1 month ago #58471 by Sandi
Replied by Sandi on topic Surgery Rejection
The fear may be unnecessary. What are your counts and have you ever treated?
I've had those injections. I used to get them every four weeks for quite a while. I've had two disk surgeries and am having problems again. I was given a choice of starting the injections again or trying physical therapy. That might be another option for you and personally, having had both, they work about the same (PT has no side effects though). Another options is a TENS which has helped tremendously.

Please Log in or Create an account to join the conversation.

  • Sandi
  • Offline
  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
More
9 years 1 month ago #58472 by Sandi
Replied by Sandi on topic Surgery Rejection
The Orthopedic Surgeon may not recommend surgery at this point because the disk has not progressed to that point yet. I had full blown stenosis twice where bone spurs were half-way through the spinal cord. That was when surgery became a must. In that case, they would not simply refuse surgery, they would advise you to get your counts up for the surgery.

Please Log in or Create an account to join the conversation.

More
9 years 1 month ago #58487 by Dmspence
Replied by Dmspence on topic Surgery Rejection
I have degenerative disk destate with a buldged disk that creating a pinched root nerve. My pain doctor will only provide a coddle injection, which does not directly treat the troubled area. My platelets are typically around 60,000 but never above 90,000 in last 7 years.

Please Log in or Create an account to join the conversation.

  • Sandi
  • Offline
  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
More
9 years 1 month ago #58489 by Sandi
Replied by Sandi on topic Surgery Rejection
DM:
Unfortunately, they usually do just treat bulging disks with pain management. I had a few that were bulged and herniated for years and treating was all that was recommended. I did the injections, PT and used the TENS. Nothing took the pain away, but it did help to relax the muscles around the area. It wasn't until it became full stenosis that they said surgery was necessary. After the first surgery, I had about a year before the pain returned and another disk was involved. Three years after that, I had another surgery to replace that disk. I had about three months pain free that time, and now another disk is involved. Back to pain management....I'm supposed to start PT but haven't gotten there yet.

Once it hits the stenosis stage, they have to do surgery or you run the risk of being paralyzed due to bone spurs cutting through the spinal cord. I don't think having ITP would get in the way of a surgery. Most people just treat to get counts up, even to have something simple like a tooth pulled. Your counts are not too bad and I'm not sure why they won't do injections unless they are worried about bleeding into the muscle. Like I said, you could ask for a referral to PT and try that, and ask for a TENS.

Please Log in or Create an account to join the conversation.

More
9 years 1 month ago #58503 by Dmspence
Replied by Dmspence on topic Surgery Rejection
Thanks for the feedback. My thoughts are that some physicians over react when they see the ITP diagnosis. A couple of years ago I was hospitalised and the surgeon gave me neupogen to increase platelets. I then saw my hemotolgist and he was furious and told me to tell the surgeon to stop trying to be a hemotolgist in that he didn't know what he was doing.

Please Log in or Create an account to join the conversation.

  • Sandi
  • Offline
  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
More
9 years 1 month ago #58505 by Sandi
Replied by Sandi on topic Surgery Rejection
Yes, many do overreact to ITP. Neupogen does not increase platelets! If memory serves, it increases white cells. Wow.

Please Log in or Create an account to join the conversation.

  • mrsb04
  • Offline
  • ITP since 2014. Retired nurse. My belief is empower patients to be involved as much as possible in their care. Read, read, read & ALWAYS question medics about the evidence base they use.
More
9 years 1 month ago #58508 by mrsb04
Replied by mrsb04 on topic Surgery Rejection
Your memory serves well Sandi

Please Log in or Create an account to join the conversation.

You’re not alone. We have answers!
Contact PDSA to connect with life altering information, resources and referrals. 440.746.9003 (877.528.3538 toll-free) or pdsa@pdsa.org.

Platelet Disorder Support Association

Platelet Disorder Support Association
8751 Brecksville Road Suite 150
Cleveland, OH 44141
440.746.9003  |  pdsa@pdsa.org
The Platelet Disorder Support Association is a 501(c)3 organization and donations are tax deductible to the fullest extent allowed by law.

IMPORTANT!

The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.