Platelet Disorder Support Association

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9 years 6 months ago #56524 by TerriC14
For some good news... was created by TerriC14
My daughter responded really well to Promacta. Her platelets started to rise as her dose was being decreasesd so at this point she is drug free with normal platelets.

Her ITP course ran a little over 3 years that we were aware of - I suspect it went longer than that before we picked up on it. The first year her counts were in the 40's so it wasn't that big a deal. The next year when her counts tanked was a little rough but after that with Promacta she did well. I am considering her very lucky that even when her counts were very low her bleeding symptoms were not that bad and that she responded so well to therapy. I guess the autoimmune issue will worry me "a little" but she is well now so no point in looking for trouble.

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9 years 6 months ago #56534 by momto3boys
Replied by momto3boys on topic For some good news...
Woohoo! That is some excellent news Terri! I'm so glad that she's doing so well and will hopefully be treatment free from this point forward. You are yet another data point giving me hope for this Promacta treatment :)

Congrats!
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9 years 6 months ago #56547 by Winnifred
Replied by Winnifred on topic For some good news...
Congratulations! Must feel wonderful!
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  • mrsb04
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  • ITP since 2014. Retired nurse. My belief is empower patients to be involved as much as possible in their care. Read, read, read & ALWAYS question medics about the evidence base they use.
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9 years 6 months ago #56548 by mrsb04
Replied by mrsb04 on topic For some good news...
Excellent news xx
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  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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9 years 6 months ago #56553 by Sandi
Replied by Sandi on topic For some good news...
That's great, Terri! Please continue to check in once in a while!

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9 years 5 months ago #56574 by TerriC14
Replied by TerriC14 on topic For some good news...
Sandi I do check the boards every other day or so just to keep up and keep informed. I don't always post, but I like to keep up with how everyone is doing.

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Platelet Disorder Support Association

Platelet Disorder Support Association
8751 Brecksville Road Suite 150
Cleveland, OH 44141
440.746.9003  |  pdsa@pdsa.org
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IMPORTANT!

The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.