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NATIONAL SHORTAGE OF PLATELETS

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9 years 6 months ago #56393 by Barb111
Replied by Barb111 on topic NATIONAL SHORTAGE OF PLATELETS
Ugh! That sounds horrible.
I really aren't having any side effects on it except for the increased BP. I sleep great, no increased appetite. No moon face. I actually lost 4 pounds! No emotional roller coaster. Hate the thought of having horrible side effects coming off! Lol!

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  • Hal9000
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  • Give me all your platelets and nobody gets hurt
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9 years 6 months ago - 9 years 6 months ago #56395 by Hal9000
Replied by Hal9000 on topic NATIONAL SHORTAGE OF PLATELETS
Ack, I found out today the dose of my premed Dex is 10 mg.

That's 1/4 of a full strength Dex pulse and for 5 days (IVIG is for 5 days) instead of the pulse of 4 days. No wonder I had difficulty getting to sleep last night.

LOL, I feel like my doc has slipped me a mickey...
ITP Types and Treatments by HAL

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9 years 6 months ago #56397 by Barb111
Replied by Barb111 on topic NATIONAL SHORTAGE OF PLATELETS
I am not sure how much I get of decadron before my Rituxan. I will have to ask. Is that the same thing as "dex"? But I don't get sleepy or wired....

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  • Hal9000
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  • Give me all your platelets and nobody gets hurt
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9 years 6 months ago #56435 by Hal9000
Replied by Hal9000 on topic NATIONAL SHORTAGE OF PLATELETS
Yes, Dex, Dexamethasone, and Decadron are all the same thing. Not sleepy or tired? LOL, solid proof that everyone reacts a little different.

Don't tell your doc it doesn't affect you - else you'll be on full Dex pulse by last treatment :P
ITP Types and Treatments by HAL

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9 years 6 months ago #56438 by Barb111
Replied by Barb111 on topic NATIONAL SHORTAGE OF PLATELETS
Ha! Yes, I checked in my health portal. It is 10mg decadron. Plus, I am still on the 50 of prednisone. I am not complaining about the no side effects, believe me! But, I haven't had any changes in my sleep. Although, my dex is only once a week.

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  • Hal9000
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  • Give me all your platelets and nobody gets hurt
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9 years 6 months ago #56494 by Hal9000
Replied by Hal9000 on topic NATIONAL SHORTAGE OF PLATELETS
I asked my nurse today about the 10 mg Dex premed. She said it was standard premed dose for IVIG (no mickey). I dunno, seems a bit much, but if it works to prevent headache during infusion - I'm game.
ITP Types and Treatments by HAL

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Platelet Disorder Support Association

Platelet Disorder Support Association
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IMPORTANT!

The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.