Remember Me     Forgot Login?   Sign up   •  Web site Help & Info

!!! DISCUSSION GROUP RULES !!!

1. You must be a registered website user in order to post and comment. Guests may read only.
2. Be kind and helpful, not rude and cynical.
3. Don't advertise or promote anything. You will be banned from the group.
4. Report problems to the moderators. THANK YOU!

Changing cities and hematologists

More
9 years 7 months ago #55813 by Nomad
Changing cities and hematologists was created by Nomad
I've had ITP for decades. I went through a long period of quiet. The last year has been very complicated and my last count was on the low side.

In approx. one year (Sept. 2017) we will be moving to another city within our state about four hours away.

Since, I know what city we are moving to and visit that city often AND I'm in the middle of a low count, and there are some complications involving my ITP, I'm finding my issues with low platelets very stressful.

Anyway, I just made an appointment with a recommended doctor in the upcoming city we will be moving to.

If you were going to change hematologists, what would you want to ask this person? Not sure yet, but I might interview a second hematologist as well (I doubt I'll do more than two). Just want to get this all clear in my head. I know it is a year away, but this one particular thing is causing me the most stress probably out of everything, so I figure if I can find a doctor I like than this is much of the battle.

Thank you.

Please Log in or Create an account to join the conversation.

More
9 years 7 months ago #55816 by Rob16
Replied by Rob16 on topic Changing cities and hematologists
I am not sure of the right questions to ask, but I would be most interested in finding out how the doctor feels about keeping you informed, having you involved in the decision making process, and about you having the final decision of how and when to treat.

If you have had ITP for decades, it will be difficult to find a doctor who knows as much as you do about ITP, and impossible to find one who knows about you as well as you do.
The following user(s) said Thank You: Nomad

Please Log in or Create an account to join the conversation.

  • Hal9000
  • Offline
  • Give me all your platelets and nobody gets hurt
More
9 years 7 months ago #55817 by Hal9000
Replied by Hal9000 on topic Changing cities and hematologists
Spurred on with what Rob said, I would look for someone that knew as much about ITP as I could. Also,
I would write down a summary of what treatments and results you've had over the years and give it to them at the interview. Ask him what he thought. If he had treated other patients similarly.

Good luck.
The following user(s) said Thank You: Nomad

Please Log in or Create an account to join the conversation.

You’re not alone. We have answers!
Contact PDSA to connect with life altering information, resources and referrals. 440.746.9003 (877.528.3538 toll-free) or pdsa@pdsa.org.

Platelet Disorder Support Association

Platelet Disorder Support Association
8751 Brecksville Road Suite 150
Cleveland, OH 44141
440.746.9003  |  pdsa@pdsa.org
The Platelet Disorder Support Association is a 501(c)3 organization and donations are tax deductible to the fullest extent allowed by law.

IMPORTANT!

The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.