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ITP TREATMENT-SPLENECTOMY & ROMIPLOSTIM

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10 years 3 months ago #52703 by bbb123
ITP TREATMENT-SPLENECTOMY & ROMIPLOSTIM was created by bbb123
I am 64yrs old woman, staying at Kolkata, India. ITP is familiar with me last 22yrs. Treated with steriod(oral)primarily. In 2011, my platelet fall and I am treated with IVIG and followed by steriod oral (certain period). Again it occured on Oct 2014 and treated with the same. Suddenly on December 2014, it again fall down and rituximab was applied. Till 14 January 2016, I was ok with almost 2 lacs platelets.On the very day, my platelet was as low as 6000 and Anti D was applied. Now my platelet is 30,000. My doctor has a plan to operate spleen and before it Dr may apply Romiplostim. Please share your experience on this ground. Is splenectomy effective for 65yrs old patient?

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  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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10 years 3 months ago #52704 by Sandi
Replied by Sandi on topic ITP TREATMENT-SPLENECTOMY & ROMIPLOSTIM
There are studies that state that splenectomies are less effective for people over 40 years old. Romiplostim has a good success rate by itself, could you try that first and see if it works?

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  • mrsb04
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  • ITP since 2014. Retired nurse. My belief is empower patients to be involved as much as possible in their care. Read, read, read & ALWAYS question medics about the evidence base they use.
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10 years 3 months ago #52709 by mrsb04
Replied by mrsb04 on topic ITP TREATMENT-SPLENECTOMY & ROMIPLOSTIM
Agreed Sandi, it's got to be worth trying Romiplostim first

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10 years 3 months ago #52758 by bethany.29
Replied by bethany.29 on topic ITP TREATMENT-SPLENECTOMY & ROMIPLOSTIM
what is romiplostim? i have never heard of this treatment

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  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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10 years 3 months ago #52760 by Sandi
Replied by Sandi on topic ITP TREATMENT-SPLENECTOMY & ROMIPLOSTIM
Romiplostim is N-Plate, which is similar to Promacta except it is a weekly injection.
The following user(s) said Thank You: bethany.29

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  • mrsb04
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  • ITP since 2014. Retired nurse. My belief is empower patients to be involved as much as possible in their care. Read, read, read & ALWAYS question medics about the evidence base they use.
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10 years 3 months ago #52769 by mrsb04
Replied by mrsb04 on topic ITP TREATMENT-SPLENECTOMY & ROMIPLOSTIM
And no dietary restrictions

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10 years 3 months ago #52772 by bbb123
Replied by bbb123 on topic ITP TREATMENT-SPLENECTOMY & ROMIPLOSTIM
How long will it work?

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  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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10 years 3 months ago #52775 by Sandi
Replied by Sandi on topic ITP TREATMENT-SPLENECTOMY & ROMIPLOSTIM
As long as you keep getting the injection. Some people have gone into remission from either Promacta and N-Plate, so it's not necessarily for life.

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Platelet Disorder Support Association

Platelet Disorder Support Association
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IMPORTANT!

The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.