Remember Me     Forgot Login?   Sign up   •  Web site Help & Info

!!! DISCUSSION GROUP RULES !!!

1. You must be a registered website user in order to post and comment. Guests may read only.
2. Be kind and helpful, not rude and cynical.
3. Don't advertise or promote anything. You will be banned from the group.
4. Report problems to the moderators. THANK YOU!

Might go in for WinRho next week....

More
10 years 4 months ago #52332 by tamar
Well, I was hoping to never have to say THAT again, but I have a cold that has really knocked my platelets around, to the point where I'm symptomatic, which almost never happens. Friday my platelet count was 29K...not god-awful but down from the 50s.

Sunday I woke up with a black eye. And, to be blunt, pink snot.

I figured I better double check the platelets on Monday, and they were/are back to 27K, but I have to assume they dipped really low on Saturday night/Sunday morning. Then last night I noticed a few other symptoms (won't bore you, nothing horrible or gross). So today, I set the wheels in motion for "WinRho if counts are <35K on Monday". I have to travel the second week of January, and would prefer to be confident my count won't do anything crazy.

I haven't had to really worry about this for several years...I know that makes me lucky. Just have to keep reminding myself of that.

Please Log in or Create an account to join the conversation.

More
10 years 4 months ago #52334 by meredithjane
Replied by meredithjane on topic Might go in for WinRho next week....
Hope you're sorted soon & can enjoy your travels.

Is it snowing there? I just shake my head when confronted with 'Let it snow, let it snow, let it snow' in the shopping centre only to emerge to a barren car park baking in 39 C degree heat! (102)

My platelet count was 34 this week - gradually going down after IVIG in March.
mj

Please Log in or Create an account to join the conversation.

More
10 years 4 months ago #52335 by tamar
Replied by tamar on topic Might go in for WinRho next week....
Hey MJ,

After 2 pretty brutal winters, mother nature is a bit timid this year. It snowed a bit this morning then turned to rain and washed the snow away. It's not uncommon for us (in Minnesota) to have lots of snow and cold by this time of year.

Wow, IVIG in March and your platelets are still hovering above 30K? That's pretty good for a "temporary" treatment. Is that expected or a surprise? I've never had IVIG, and frankly didn't even think about that....it might have been a better choice than WinRho, given the 8 hours of observation I'll have to go through if I have the tx. All I knew is that steroids were out of the question--I'd rather have the 8 hour wait and get on with my life.

Please Log in or Create an account to join the conversation.

  • Sandi
  • Offline
  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
More
10 years 4 months ago #52342 by Sandi
Replied by Sandi on topic Might go in for WinRho next week....
It has been a while! That's good. Sorry you have to do it again but you know it works well for you.

Please Log in or Create an account to join the conversation.

More
10 years 4 months ago #52344 by meredithjane
Replied by meredithjane on topic Might go in for WinRho next week....
I've had 3 IVIG, 1st for nose bleed, next 2 for surgery preparation, responded well each time (apart from an horrific headache next day) & counts gradually fell back to my 'usual' 30ish over several months. Yes, I am very fortunate.
mj

Please Log in or Create an account to join the conversation.

More
10 years 4 months ago #52348 by Winnifred
Replied by Winnifred on topic Might go in for WinRho next week....
Sorry you are having to treat! Winrho's not a bad choice! My choice of treatments! Here's to treating than not having to for a long long while!

Please Log in or Create an account to join the conversation.

You’re not alone. We have answers!
Contact PDSA to connect with life altering information, resources and referrals. 440.746.9003 (877.528.3538 toll-free) or pdsa@pdsa.org.

Platelet Disorder Support Association

Platelet Disorder Support Association
8751 Brecksville Road Suite 150
Cleveland, OH 44141
440.746.9003  |  pdsa@pdsa.org
The Platelet Disorder Support Association is a 501(c)3 organization and donations are tax deductible to the fullest extent allowed by law.

IMPORTANT!

The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.