Platelet Disorder Support Association

Join Us:

Membership Matters

Support Us:

Make a Donation
    Remember Me     Forgot Login?   Sign up   •  Web site Help & Info

!!! DISCUSSION GROUP RULES !!!

1. You must be a registered website user in order to post and comment. Guests may read only.
2. Be kind and helpful, not rude and cynical.
3. Don't advertise or promote anything. You will be banned from the group.
4. Report problems to the moderators. THANK YOU!

is your spleen always enlarged with itp????

More
10 years 6 months ago #51423 by CHELS04
is your spleen always enlarged with itp???? was created by CHELS04
my docs have never said anything about it was just curious.

Please Log in or Create an account to join the conversation.

  • EmilyK
  • Offline
  • Diagnosed jan 2015 at age 50 with 13,000 platelets.
More
10 years 6 months ago #51430 by EmilyK
Replied by EmilyK on topic is your spleen always enlarged with itp????
I think it might be rare for it to be enlarged. Usually the spleen is perfectly healthy, as far as I know, it just isn't acting perfectly since it is destroying perfectly healthy platelets too early. Mine is not enlarged, although my Indium scan showed my spleen was destroying 80% of my platelets within 1.5 days. I'm not expert, however.

Please Log in or Create an account to join the conversation.

  • Melinda
More
10 years 6 months ago #51431 by Melinda
Replied by Melinda on topic is your spleen always enlarged with itp????
ITP since 1989 and my spleen has never been enlarged.

Please Log in or Create an account to join the conversation.

More
10 years 6 months ago #51434 by Ann
Replied by Ann on topic is your spleen always enlarged with itp????
I've always understood that if the spleen is enlarged they should check for something else other than ITP.

Please Log in or Create an account to join the conversation.

  • Sandi
  • Offline
  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
More
10 years 6 months ago #51435 by Sandi
Replied by Sandi on topic is your spleen always enlarged with itp????
I've read the same thing as Ann. If the spleen is enlarged, they should look for another cause of low platelets, such as liver problems.

Please Log in or Create an account to join the conversation.

  • mrsb04
  • Offline
  • ITP since 2014. Retired nurse. My belief is empower patients to be involved as much as possible in their care. Read, read, read & ALWAYS question medics about the evidence base they use.
More
10 years 6 months ago #51437 by mrsb04
Replied by mrsb04 on topic is your spleen always enlarged with itp????
Emily I think the spleen acts perfectly normally. It is removing rogue antibodies which unfortunately are attached to platelets thus taking them out too. xx
The following user(s) said Thank You: Sandi, Melinda

Please Log in or Create an account to join the conversation.

More
10 years 6 months ago #51439 by Aoi
Replied by Aoi on topic is your spleen always enlarged with itp????
I've also heard that in ITP the spleen should be normal on exam. My hematologist told me that last year, and my spleen continues to be normal on palpation and look normal on ultrasound.

Please Log in or Create an account to join the conversation.

  • Sandi
  • Offline
  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
More
10 years 6 months ago #51443 by Sandi
Replied by Sandi on topic is your spleen always enlarged with itp????
You are right, MrsB! The spleen is doing exactly what it's supposed to do. The problem lies with the antibodies, not the spleen.

Please Log in or Create an account to join the conversation.

You’re not alone. We have answers!
Contact PDSA to connect with life altering information, resources and referrals. 440.746.9003 (877.528.3538 toll-free) or pdsa@pdsa.org.

Platelet Disorder Support Association

Platelet Disorder Support Association
8751 Brecksville Road Suite 150
Cleveland, OH 44141
440.746.9003  |  pdsa@pdsa.org
The Platelet Disorder Support Association is a 501(c)3 organization and donations are tax deductible to the fullest extent allowed by law.

© Copyright 1997 - 2026, Platelet Disorder Support Association. All rights reserved.

IMPORTANT!

The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.