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Does anyone have an iron issue?

  • Kelirae24
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  • I'm 31 years old and a mom to two awesome little boys, I was diagnosed with itp when I was 17 years old. With no treatment my counts are 0-5 I am currently on nplate and I had a splenectomy in 2004
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10 years 7 months ago #51188 by Kelirae24
Does anyone have an iron issue? was created by Kelirae24
I've had low iron on and off since I was diagnosed with Itp 12 years ago. Does anyone else have low iron just got a call from my Drs office my iron saturation is 8. was just curious if it has anything to do with itp

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  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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10 years 7 months ago - 10 years 7 months ago #51190 by Sandi
Replied by Sandi on topic Does anyone have an iron issue?
Kelli:

It could have something to do with ITP if there is bleeding; such as heavy periods or blood in the gastrointestinal area. If no bleeding is present, then they should look at possible Hemolytic Anemia. That can be determined with a blood test called a Coombs test. There are other types of anemia as well that you could be tested for.

Are they going to do anything about it?

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10 years 7 months ago #51200 by Aoi
Replied by Aoi on topic Does anyone have an iron issue?
Sorry to hear you're dealing with iron issues. I've been on iron supplements for years, though it's probably a result of poor intestinal absorption and not ITP in my case (I have a number of vitamin and mineral deficiencies). My docs were hoping the iron and other supplements would increase my platelet count but that didn't happen. Definitely follow Sandi's suggestions about followup discussions/testing with your treatment team.

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  • Kelirae24
  • Topic Author
  • Offline
  • I'm 31 years old and a mom to two awesome little boys, I was diagnosed with itp when I was 17 years old. With no treatment my counts are 0-5 I am currently on nplate and I had a splenectomy in 2004
More
10 years 7 months ago #51229 by Kelirae24
Replied by Kelirae24 on topic Does anyone have an iron issue?
I'll ask about that they never really tried to find the cause there's some months it's fine and others not I know I've been tested for probably everything under the sun over the years and have never found anything else

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10 years 7 months ago #51230 by Ann
Replied by Ann on topic Does anyone have an iron issue?
I always had low iron until the menopause. It's pretty normal for women. When I was diagnosed with ITP my Hb was fine but when ferritin was tested it was very low. I haven't had it tested for years so have no idea what it is now. Hb is still just about okay now though.

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The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.