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Advice Needed: How to know when to take notice

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10 years 7 months ago - 10 years 7 months ago #51043 by Clarissajs
Advice Needed: How to know when to take notice was created by Clarissajs
Hi everyone. I'm new to this community and have had ITP since 2007. The lowest my numbers have become are 20K and they live around 58-65K. Reading other threads it seems that isn't all that severe. I get a lot of bruises, get really tired and only mild rash. My PCP doesn't really think I need to do regular checks. Is there something I should be on the look out for so I don't get surprised if my numbers suddenly plummet? Each time its been a surprise.

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  • Melinda
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10 years 7 months ago #51048 by Melinda
Replied by Melinda on topic Advice Needed: How to know when to take notice
Believe me you will know - it could just be a "feeling"

Back in 2002 I had a "feeling" my count was down even though I had no symptoms whatsoever, none. Well my count was low and it kept dropping - refused prednisone and had 1 WinRho IV.

I think if you want to have a count done your PCP should allow it - I'm on an every 3-4 month schedule now. But I can have a count done any time I want, I just email her and ask. Talk to your PCP about it.

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  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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10 years 7 months ago #51053 by Sandi
Replied by Sandi on topic Advice Needed: How to know when to take notice
Some signs to look for are bleeding gums, increasing petechiae, large, dark spontaneous bruises and blood blisters in the mouth.

I'm impressed that your PCP is okay with counts of 20k. Most would pitch a fit. It's good that you've not had to treat; that is the hard part.

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Platelet Disorder Support Association

Platelet Disorder Support Association
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IMPORTANT!

The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.