I noticed that you guys had some questions in the Secret Man's cave and not wanting to intrude in there, I wanted to answer you here. I had to go in and monitor posts, sorry.
Aoi:
This topic is relevant for me, since I've got multiple problems with my spine, including a perineural cyst at L5/S1 that is likely the cause of some neuropathy in my legs and stenosis in my neck causing cervical radiculopathy.
So I'm wondering if such problems are more common among people with ITP, and how or if having ITP affects the value of various approaches to treatment. I'm also wondering if recovery from a surgery to my c-spine may be affected by ITP. Any thoughts or experiences would be appreciated.
Those conditions should not be related to ITP at all. If a person has been on steroids for a long time though, that could play a part in the degeneration of bone and muscle. Having ITP could affect the treatment for spinal issues if you'd need surgery or any other invasive procedure. If counts are high enough, you'd be fine but if not, of course you'd need treatment first to get counts up. Having ITP should not affect recovery if counts are at a safe level unless you are or have recently been on steroids. That could slow healing a bit.
I have had surgeries while having ITP and did not have any complications or slow recovery because of it.
Stoutroots:
As far as man issues, one question i had was I got my wife pregnant right around when I was having symptoms and probably had a low count. I am curious if this creates any potential risks for the child.
The other thing i have been wondering about is that I have had major back problems the last 3 years with lots of sciatic pain. To treat this I looked into prp (platelet rich plasma) injections as a possible cure for the pain. Now diagnosed, I am wondering if the ITP has played a role in my slow recovery from my back issues.
Glad to have this site as a great resource. Hopefully I can find a treatment that will work for me. Sounds like it will be a long road ahead.
Your baby should not be affected at all because you have ITP. However, there is a genetic predisposition to inherit autoimmune disorders, so your child may one day acquire an autoimmune disorder of some sort. I would not spend time thinking about it or worrying about it because there is a good chance that it won't occur. I have three children (all grown). I have ITP and Lupus. Only one of my children ended up (so far) with an autoimmune disorder. She has Graves Disease and was diagnosed at 22 years of age.
ITP more than likely did not have anything to do with slow recovery of back issues. You may not have had lower counts at that time and if not, ITP had nothing to do with it.
Sometimes ITP can be challenging and it can take time to stabilize counts, but sometimes it resolves fairly quickly after a few months or a year. You can always hope for that and it does happen. If not, it just becomes a part of your life and you learn to manage it and live normally.
