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Getting Frustrated

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11 years 8 months ago #43091 by Dean
Getting Frustrated was created by Dean
I have been between 1-8k the past several weeks. Started Rituxan for the 3rd time last Thr. I responded pretty good the first two times, so hoping third time is a charm. Once a week for 4 weeks. Count last week was 1k, so Dexamethsone was given along with Platelets. Count on Sat was 19k. Today they were 8k. Had IVIG and platelets today. This crap really wearing me out. It is getting hard to keep track of what I have had done.

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  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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11 years 8 months ago #43098 by Sandi
Replied by Sandi on topic Getting Frustrated
Rituxan takes time, Dean. Hang in there. You've been here before; this is old hat for you. Hopefully in a few weeks, you'll be back to normal.
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  • dru
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  • I developed hemolytic anemia in 1999 and ITP in 2005. Treatments have been splenectomy, prednisone, IVIG, and Rituxan.
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11 years 8 months ago #43101 by dru
Replied by dru on topic Getting Frustrated
It sure can be frustrating! But, since you responded before it seems very likely you will get a good result again.......it just takes some time.
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11 years 8 months ago #43103 by Dean
Replied by Dean on topic Getting Frustrated
Apparently IVIG is a two day treatment. They did not tell me that yesterday. So sitting for another 5-6 hrs. Could have left the IV in. Getting a little tired of needles. The benadryl IV really kicks in fast!!

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  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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11 years 8 months ago #43107 by Sandi
Replied by Sandi on topic Getting Frustrated
IVIG can be given over 1 to 5 days. Depends on the Dr.

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11 years 8 months ago #43109 by Dean
Replied by Dean on topic Getting Frustrated
Sure hope this course of treatments lasts for a looooooong time!!!

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  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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11 years 8 months ago #43110 by Sandi
Replied by Sandi on topic Getting Frustrated
I hope so too, Dean. You have a pretty good track record with Rituxan.
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11 years 8 months ago #43129 by Winnifred
Replied by Winnifred on topic Getting Frustrated
here's hoping for a quick response and that you feel better fast!
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11 years 8 months ago #43136 by Dean
Replied by Dean on topic Getting Frustrated
Count is 134k. 3 more Rituxan treatments to go.

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Platelet Disorder Support Association

Platelet Disorder Support Association
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IMPORTANT!

The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.