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My third time with IPT

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11 years 9 months ago #42581 by jd90958
My third time with IPT was created by jd90958
Four weeks ago I was hospitalized with my 3rd "round" of ITP. The first was 37 years ago when I was a teen ager and then again 10 yrs ago. This time my count was less than 1,000. Never had it been that low. I spent 10 days in the hospital, had 5 IVIG treatments, steroids, and just had my 4th and hopefully last Rituxin treatment on Thurs. The specialist, 3 of them, feel I will have continued problems with this. I am curious if anyone else has had issues like this and over so many years. Thanks

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  • Kelirae24
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  • I'm 31 years old and a mom to two awesome little boys, I was diagnosed with itp when I was 17 years old. With no treatment my counts are 0-5 I am currently on nplate and I had a splenectomy in 2004
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11 years 9 months ago - 11 years 9 months ago #42582 by Kelirae24
Replied by Kelirae24 on topic My third time with IPT
Not over that many years but this is 11 for me straight and doesn't seem like it's goin anywhere keep your head up:)
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  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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11 years 9 months ago #42590 by Sandi
Replied by Sandi on topic My third time with IPT
Remissions come and go, so it's not unusual to relapse at times. There is no reason to think that you won't have another remission since Rituxan can cause that to happen. :)
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  • karenr
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  • Diagnosed in 2000, at 59, after being on moderately high doses of NSAIDs for arthritis. Splenectomy and rituxan both failed (2004). Did well on prednisone till summer 2018--then terrible reactions. Promacta since 11-19.
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11 years 9 months ago #42626 by karenr
Replied by karenr on topic My third time with IPT
JD, I'm curious about your being in the hospital--most of us aren't hospitalized, even with low, low counts. What were your symptoms that caused the hospitalization?

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  • weirdjack
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11 years 9 months ago #42645 by weirdjack
Replied by weirdjack on topic My third time with IPT
I am also curious as to why the hospitalization?

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Platelet Disorder Support Association

Platelet Disorder Support Association
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The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.