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How do I find a topic? Example ITP and bilirubin

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11 years 9 months ago #42425 by Alice
Is there a way to find topics such as "low platelet count and bilirubin," or ITP and potassium?
Thanks, Alice

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  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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11 years 9 months ago #42430 by Sandi
Alice:

If you're looking for information on those things on this Forum, you probably won't find much since there isn't any connection between ITP and bilirubin/potassium.

Some people have had low potassium due to Prednisone use and that has been discussed, but not in detail. What are you looking for, exactly?

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11 years 9 months ago #42706 by Alice
Hi Sandi,

I am wondering if you are the same Sandi that was in the discussion group in 2002?

I was diagnosed with ITP in 2002 although I think I have probably had it all of my life. I had a series of Rituxan infusions in 2003 which I credit with raising my platelet count above 50. Fifty is considered safe for me.

I have had 3 remissions (platelets in teens or lower) with bruising and nose bleeds since 2003. I received infusions of Rituxan each time and my platelets returned to above 50.

My platelets were in the teens on 5/29/14 so I began Rituxan again. On 6/28/14 I dropped to 8 platelets and started on a quick Prednisone fix. On 6/30/14, platelets 26, I had some other kind of blood test... electrolyte study? I didn't even know they were doing it. On 7/8/14, platelets 36, the lab tech told me my potassium was high. My kidney function was high and so was my bilerubin.
She suggested that my potassium could be high just because of the infusion and the kidney function could be high because I hadn't urinated (or had)... but the bilerubin (sp?) was a concern.

I have an appointment to see my hematologist on Aug. 4 and I will ask her about the bilerubin but I have found that this site is usually very informed about anything having to do with ITP and thought I'd check it out. Since there isn't anything mentioned about bilerubin and ITP I am guessing that they are unrelated.

I have, of course, researched bilerubin and know it is associated with liver/kidney/etc.

Thank you for your response. Alice

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  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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11 years 9 months ago #42708 by Sandi
Good luck. Your Hemo will probably refer you to a different doctor to deal with any liver or kidney problems. The electrolyte/metabolic panel is very common; I have one done every three months. It's a good thing that someone decided to run those tests when they did.

Yes, I am the same Sandi. :)

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