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To the itper's who get ivig

  • Kelirae24
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  • I'm 31 years old and a mom to two awesome little boys, I was diagnosed with itp when I was 17 years old. With no treatment my counts are 0-5 I am currently on nplate and I had a splenectomy in 2004
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11 years 11 months ago #41446 by Kelirae24
To the itper's who get ivig was created by Kelirae24
I'm getting 85000 mg a week but it doesn't hold the whole week I split it in two days cause it's easier to take that way. Does anyone know how much dosage they get of this stuff? Just curious

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11 years 11 months ago - 11 years 11 months ago #41463 by drbean7218
Replied by drbean7218 on topic To the itper's who get ivig

Kelirae24 wrote: I'm getting 85000 mg a week but it doesn't hold the whole week I split it in two days cause it's easier to take that way. Does anyone know how much dosage they get of this stuff? Just curious

It's a normal, since ivig can boost your no. of platelets in a short period of time, but only last for a week/ less than a week.

The dose of IVIG depends on the weight of patient, e.g. my weight is 8x kg, the doctor calculated the dose should be 2,750 ml/ 33g of ivig. My ivig treatment always spread into 5 days, each day will infuse 550ml of ivig, the duration is 6-8 hrs per day.

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  • Kelirae24
  • Topic Author
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  • I'm 31 years old and a mom to two awesome little boys, I was diagnosed with itp when I was 17 years old. With no treatment my counts are 0-5 I am currently on nplate and I had a splenectomy in 2004
More
11 years 11 months ago #41469 by Kelirae24
Replied by Kelirae24 on topic To the itper's who get ivig
Oh wow that's a lot of time getting ivig I always wish you could get it as an Iv push lol but I'm a really impatient person

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11 years 11 months ago - 11 years 11 months ago #41485 by drbean7218
Replied by drbean7218 on topic To the itper's who get ivig

Kelirae24 wrote: Oh wow that's a lot of time getting ivig I always wish you could get it as an Iv push lol but I'm a really impatient person

Thank you very much for your wishes.

I've infused 8 times ivig in last two years. My doc said that it was the best practice to spread the infusion of ivig into couple of days, rather than finish it within 48 hours.

IVIG can boost my platelets count within few days, also drop dramatically after few days.

That's why I need other medicines to compress the attack of the system and produce more platelets for the system attack, but it takes time.

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  • Kelirae24
  • Topic Author
  • Offline
  • I'm 31 years old and a mom to two awesome little boys, I was diagnosed with itp when I was 17 years old. With no treatment my counts are 0-5 I am currently on nplate and I had a splenectomy in 2004
More
11 years 11 months ago #41502 by Kelirae24
Replied by Kelirae24 on topic To the itper's who get ivig
Oh gotcha I thought you meant you get ivig 5 times a week 6-8 hours. Ivig is a great emergency medicine it's just to bad it doesn't last longer I get it three times a week right now for about 2-3 hours a day

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11 years 11 months ago #41504 by drbean7218
Replied by drbean7218 on topic To the itper's who get ivig

Kelirae24 wrote: Oh gotcha I thought you meant you get ivig 5 times a week 6-8 hours. Ivig is a great emergency medicine it's just to bad it doesn't last longer I get it three times a week right now for about 2-3 hours a day


IVIG didn't last for longer is the truth but another problem was the price of ivig. For me, each treatment would cost HKD 110,000/ USD 14,XXX. Fortunately, this expense was paid by Hong Kong Government :laugh:

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Platelet Disorder Support Association

Platelet Disorder Support Association
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IMPORTANT!

The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.