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Fibromatosis and Nplate

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12 years 1 week ago #41099 by Christine
Fibromatosis and Nplate was created by Christine
For the past few years I have been talking about how Nplate is the wonder drug for me. Today I had the results of my recent BMB and the doc said I POSSIBLY have the start of fibromatosis in the bone marrow - apparently the Nplate is scarring it. I have another BMB in Nov to see if it has progressed. PLEASE if anyone has info on this please let me know - I read articles on the internet and they scared me.
I tried to find mention of this on this site and couldn't find anything or I was not looking in the right place :dry:
My plts have been dropping lately but that has never really been a concern of mine - last count 16
High plts everyone, Christine :) :) :)

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12 years 6 days ago #41106 by Ann
Replied by Ann on topic Fibromatosis and Nplate
I think you mean fibrosis. The reports say that it is reversible and will go away if you stop using the drug. It's not common.
The following user(s) said Thank You: Christine

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12 years 6 days ago #41107 by Christine
Replied by Christine on topic Fibromatosis and Nplate
Thank you - I was so confused when I left his office (not the usual Christine!!!!) I'm sure you are right, now I come to think about it. It was the thought of the Gamma transfusions, or even worse, prednisone resuming when I was taken off Nplate.

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  • midwest6708
  • Offline
  • ~ Janet ~ Diagnosed Sept. 2008
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12 years 6 days ago - 12 years 5 days ago #41112 by midwest6708
Replied by midwest6708 on topic Fibromatosis and Nplate
May I ask...
When taking NPlate, do repeated BMBs have to be done to check for fibrosis? How often?

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12 years 5 days ago #41114 by Ann
Replied by Ann on topic Fibromatosis and Nplate
Biopsies don't usually have to be done while on Nplate unless a change in the blood cells is noticed. So doing regular blood film / smear checks is the most important thing.
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Platelet Disorder Support Association

Platelet Disorder Support Association
8751 Brecksville Road Suite 150
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IMPORTANT!

The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.