Hello Again!

Hey Everyone!
I hope you all had an amazing Easter! Mine was egg-cellent...my spring break went entirely too fast! I really can't even remember the last specific time I was on here talking. I always drop in and read posts, but haven't posted my own in a while. With school starting (and soon ending!), I get so wrapped up (which I think is a good thing) that I forget or don't have the energy to think about anything but....REST! So, I wanted to update some of my ITP peeps. Nothing really new on this end. I am so excited that summer is just a hop, skip, and a jump away! This kindergarten teacher is ready for a break! Talk about exhausting! My platelets have been crazier than ever. It was around this time last year that I came out of my five year remission and they started going bonkers. Well, they are STILL going bonkers. The main difference this time around is that I don't care as much. Have you ever said, "To heck with this!" and went about your business? Well, that is me now. Listen to these counts and you will say, "oh, I get it!" Which I'm sure you all do, very well! My platelets in the past 10 months have gone from 130,000 down to 60,000, up to 360,000, down to 180,000, and... I could go all day long with this odd pattern. They are basically insane and uncontrollable. I haven't been on any medication since around November. I get checked once monthly and it's always exciting (not!) to see what that "magic number" is. For example, my platelets were around 120,000 once. I got sick (uh oh!) with (drumroll, please...remember I do teach kindergarten) flu, bronchitis, double pink eye, and a cold sore all together...yes. All together. It wasn't fun, let me tell you. I'll spare the details. Anyways, what would one think with that? Platelets will tank, right? WRONG. I went to get my monthly check and they had gone up from 129,000 to 208,000. What in the world? Well, in true bi-polar fashion, my next check is down to 101,000. Even my hema doesn't know what to say. So, I have decided I am DONE asking. What's the point in asking anymore? It is too exhausting! So, I am asking myself.... Do I feel ok? (yes) Do I have symptoms? (no) Am I happy? (yes) Does a number dictate my life? (NOT ANYMORE!) Too much thinking and asking for this girl. Good luck to all of you and I am sure I will be checking in more and more as summer approaches and I have more free time (PRAISE GOD!).

Well hello and aren't you chipper? No more crazy Dex girl! I'm glad things are going so well for you. Your platelets are doing great!

Well done NatalieM you have crossed the threshhold and can start living your life. I remember those times and am glad I am now in the space where ITP is at the back of my brain! This board and the people on it are a tremendous help.

I remember that time! Deciding I wouldn't let it run my life. Its like a massive weight has lifted.

It was years ago I figured out that when I drop I do not go back up. I respond great to treatment I bounce back up quickly. So I live my life and when I see symptoms I get a count. When my symptoms get really bad (my gums start bleeding and do not stop) I seek treatment.


Life is too short to let anything run your life.