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Splenectomy

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12 years 2 weeks ago #40918 by tigereyes
Splenectomy was created by tigereyes
I've fought the good fight. But after nearly 8 years I must say goodbye to my spleen.

I've stopped responding to treatment. With the boys I'm at my last option. I'm sad but hing this will work n
Jennifer

Mother of 2 boys
Last Rituxan 12/09/09--3rd time around with not much sucess
Winrho-09/25/09 Didnt work.
IVIG--Countless times

Latest counts 8 4/2013-just started Promatca
Diag. 9/2006

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12 years 2 weeks ago #40923 by CindyL
Replied by CindyL on topic Splenectomy
Good luck, I hope it works for you! When is the surgery?

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  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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12 years 2 weeks ago #40924 by Sandi
Replied by Sandi on topic Splenectomy
Good luck, Jennifer. I hope it works for you!

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12 years 1 week ago #40964 by Winnifred
Replied by Winnifred on topic Splenectomy
Heres hoping for success and ITP becoming a memory!

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11 years 11 months ago #41696 by tigereyes
Replied by tigereyes on topic Splenectomy
Splenectomy is scheduled for next friday. I tried Promatca to hold me over, I had a reaction and had to discontinue the med after 3 weeks. Got my first N Plate injection yesterday. IVIG friday. My platelets have dropped down to single digits again. Im really hoping this works,spending 2 days every other week getting IVIG is hard.
Jennifer

Mother of 2 boys
Last Rituxan 12/09/09--3rd time around with not much sucess
Winrho-09/25/09 Didnt work.
IVIG--Countless times

Latest counts 8 4/2013-just started Promatca
Diag. 9/2006

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  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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11 years 11 months ago #41700 by Sandi
Replied by Sandi on topic Splenectomy
Good luck, Jennifer! I hope all goes well. Keep in touch!

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11 years 10 months ago #41798 by Winnifred
Replied by Winnifred on topic Splenectomy
Saying a prayer for a quick and speedy recovery! With great increases to platelet count!

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  • dru
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  • I developed hemolytic anemia in 1999 and ITP in 2005. Treatments have been splenectomy, prednisone, IVIG, and Rituxan.
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11 years 10 months ago #41808 by dru
Replied by dru on topic Splenectomy
Wishing you good success with your surgery. Keep us posted.

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11 years 10 months ago #41947 by rachaely
Replied by rachaely on topic Splenectomy
Hi Jennifer - I think you'll have had your surgery by now - hope it went well ... do update us once you're up and about again!

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11 years 10 months ago #42059 by ashybobashy
Replied by ashybobashy on topic Splenectomy
Good luck hope it goes well.

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  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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11 years 10 months ago #42062 by Sandi
Replied by Sandi on topic Splenectomy
Jennifer? I hope you check in soon. Worried Mother Hen here! :huh:

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11 years 10 months ago #42103 by Winnifred
Replied by Winnifred on topic Splenectomy
Umm yes please we all are getting worried! Update needed!

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  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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11 years 9 months ago #42784 by Sandi
Replied by Sandi on topic Splenectomy
Has anyone heard from Jennifer? I used to have her e-mail address but I don't think I have it any more. :S

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The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.