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Cleveland Clinic Thoughts

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12 years 1 month ago #40421 by cjfrantz11
Cleveland Clinic Thoughts was created by cjfrantz11
I have been dealing with ITP since 2005. I have had a splenectomy, tried WinRho, Rituxin, oral prednisone, and IVIG all with no success. The splenectomy worked for a few years and then my ITP returned. I am trying to decide if I need to seek a 3rd opinion from possibly Cleveland Clinic. Has anyone been there and had a great experience? I would love to get opinions on who to see there since I have never been there. Any help would be greatly appreciated.

Thanks!!

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  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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12 years 1 month ago #40424 by Sandi
Replied by Sandi on topic Cleveland Clinic Thoughts
How are your counts? Have you tried N-Plate or Promacta?

Hopefully, someone will answer your question about the Cleveland Clinic.

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Platelet Disorder Support Association

Platelet Disorder Support Association
8751 Brecksville Road Suite 150
Cleveland, OH 44141
440.746.9003  |  pdsa@pdsa.org
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IMPORTANT!

The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.