Splenectomy, March 2013 counts up till now-H-Pylor

:dry: I have looked this site over for a few years now.I was a guest for the longest time. I Was diagnosed with ITP August 2011. I went through many treatments. Prednisone, Winrho, Rutixin,IVIG, platelets when I was 1000. Then I had a spenectomy March of 2013. My counts were 250,000+ for a year. I dropped to "0" last week. They found I have H-Pylori now. Is there any hope? I had 4 rounds of IVIG and platelets last week. My count was 122,000 on Thursday.I have terrible anxiety I am broken right now..

Angel, if you've been coming to this site for a few years, you know that there is hope! You still respond to IVIg, and hopefully you are on antibiotics for the h-pylori.

Which of the treatments that you tried raised your platelets, and which was tolerable? WinRho is no longer an option since you've had a splenectomy, but the other treatments you mentioned can be tried again and may even work differently/more effectively without a spleen. If you even need to try anything else....maybe you will stay at a safe count now and won't need to treat.

Tamar

Angel:

Of course there is hope! Splenectomies are not a sure thing and you probably knew that going in if you've been reading here. I wouldn't expect H Pylori treatment to cause a full remission, but it is possible that your counts could stabilize with the antibiotics and possibly another ITP treatment. Treating H Pylori has not been the 'cure' that many have hoped for, but I have seen a few people get a good response to treating it. There is a good chance that you could achieve another remission in time with the right treatment combination.

Sandi,

Thank you for the words of encouragement. My hope was crushed and you have helped... I am still learning.

Thank you
Angeltwob1

Tamar,

Thank you for helping me. I am on antibiotics. IVIG was the only treatment that I HAD responded to. But also not tolerated well. The anxiety sometimes is just overwhelming.

Thank you for your encouragement

Angeltwob1