Platelet Disorder Support Association

Join Us:

Membership Matters

Support Us:

Make a Donation
    Remember Me     Forgot Login?   Sign up   •  Web site Help & Info

!!! DISCUSSION GROUP RULES !!!

1. You must be a registered website user in order to post and comment. Guests may read only.
2. Be kind and helpful, not rude and cynical.
3. Don't advertise or promote anything. You will be banned from the group.
4. Report problems to the moderators. THANK YOU!

meds for itp whats next

More
12 years 1 month ago #40325 by jslauson
meds for itp whats next was created by jslauson
my son was diagnosed with itp August of 2012 the drs tried ivig several times it would bring it up for a short time but never lasted then they used steroid the platlets would rise and fall wile he was still taking the steroids then they tried retuximad and that made to diffrience they still dropped they are now doing nplate witch he is responding to a little better but they have to keep increasing the dose and they have a max number that he is creeping up on I was wondering what are some other meds they havnt tried that others have seen some kind of results with they think my sons itp started due to a virus they say his body is attacking his platelets thinking they are a virus its kind of funny cause he was sick all the time prior to itp and he has gone since august of 2012 and hasn't been sick since I kind of wish he would and maybe it will cause his body to straiten out I asked the dr. if they could give him a virus to try but they wouldn't they say its to risky. I figure if its what caused the problem it would be nice if it could fix it.

Please Log in or Create an account to join the conversation.

More
12 years 1 month ago #40326 by Ann
Replied by Ann on topic meds for itp whats next
Have a look at the latest guidelines. The bit about children is about half way down.

bloodjournal.hematologylibrary.org/content/115/2/168.full

It also talks about when children should be treated and when watch and wait is more appropriate. You may find that helpful.

Please Log in or Create an account to join the conversation.

  • Sandi
  • Offline
  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
More
12 years 1 month ago #40337 by Sandi
Replied by Sandi on topic meds for itp whats next
You asked the Dr. if they would give your son a virus? I'm not sure a Dr. would have access to a virus and if he did, I wouldn't want to go there!

Ann is right, watch and wait is sometimes a viable option.

Please Log in or Create an account to join the conversation.

You’re not alone. We have answers!
Contact PDSA to connect with life altering information, resources and referrals. 440.746.9003 (877.528.3538 toll-free) or pdsa@pdsa.org.

Platelet Disorder Support Association

Platelet Disorder Support Association
8751 Brecksville Road Suite 150
Cleveland, OH 44141
440.746.9003  |  pdsa@pdsa.org
The Platelet Disorder Support Association is a 501(c)3 organization and donations are tax deductible to the fullest extent allowed by law.

© Copyright 1997 - 2026, Platelet Disorder Support Association. All rights reserved.

IMPORTANT!

The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.