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Rituximab and Insomnia

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12 years 1 month ago #40172 by kyasseen
Rituximab and Insomnia was created by kyasseen
I've had the mother of all insomnia since having Rituximab treatment four months ago. Doctor gave me sleeping pills- I've taken only one- scared of becoming addicted!. Any advice would be welcome.
Kalim

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  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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12 years 1 month ago #40174 by Sandi
Replied by Sandi on topic Rituximab and Insomnia
There can be different reasons for insomnia. I had it once and it lasted for two years. I had no idea what was going on, but I could not get comfortable once I was in bed and flopped around like a fish all night. I felt like I had Restless Legs Syndrome in my entire body. None of my doctors knew why, but I also have Lupus and one doctor blamed it on the neuropathy that I have on and off. I didn't think that was it. My Rheumatologist randomly did a Ferritin test on me one day and the result showed a low level. Out of curiosity, I looked up the symptoms of low Ferritin and found RLS. I started taking iron and within two weeks, it was gone. I had to solve that on my own.

I also find that I can not sleep and feel uncomfortable when my Potassium is low.

During that two years, I also asked for sleeping pills and could only get a script for a month. I told my Rheumatologist that I was going to hit myself over the head with a brick if I didn't get help. Turned out that sleeping pills were not the answer anyway.

If I were you, I'd try to figure out what is keeping you awake and go from there. Sometimes a Vitamin deficiency can be the answer.

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