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Are you sitting down? (count)

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12 years 5 months ago #38419 by Winnifred
Are you sitting down? (count) was created by Winnifred
So I called for a count today the nurse put me on hold. My phone reception wasn't the greatest as I was walking on an indoor track. She comes back and proceeds to tell me my count!

300 and something! I've never heard a number that high before it caught me completely by surprise. I was like what?? totally drew a blank! In all my years of having ITP I've responded immediately to treatment getting counts over 100, but never this high.

So my count was 3 something 5 not sure if she said 305 or 325 or 375 doesn't matter it is my highest count ever! I will probably call my family doctor just to confirm the number. Talk about shock!!

Well this happy camper is now going to get ready for work! Have a great one all!

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12 years 5 months ago #38428 by Katsim
Replied by Katsim on topic Are you sitting down? (count)
Amazing!!! Enjoy the high :D
Lowest count 1. Highest count 207 (ivig) Indium scan showed predominantly splenic destruction. No meds currently, just seeing how things go.

"Life isn't about waiting for the storm to pass - it's about learning to dance in the rain".

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12 years 5 months ago #38430 by CindyL
Replied by CindyL on topic Are you sitting down? (count)
Awesome count, Julia! Was this after a treatment or on its own?

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12 years 5 months ago #38436 by Kristine
Replied by Kristine on topic Are you sitting down? (count)
Congratulations. I'm so happy for you! Enjoy.

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12 years 5 months ago #38438 by Rob16
Replied by Rob16 on topic Are you sitting down? (count)
Vindicated! You were so right about not pressing the panic button. And Pooh Bear was right about not underestimating the value of Doing Nothing! Great news!!!

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12 years 5 months ago #38439 by Christine
Replied by Christine on topic Are you sitting down? (count)
Congratulations.

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  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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12 years 5 months ago #38442 by Sandi
Replied by Sandi on topic Are you sitting down? (count)
Julia - that's great news! What was that from? Win-Rho?

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12 years 5 months ago #38449 by Slammed
Replied by Slammed on topic Are you sitting down? (count)
Wow, that's awesome news! I'm sure you feel like doing your happy dance!

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12 years 5 months ago #38462 by Winnifred
Replied by Winnifred on topic Are you sitting down? (count)
This count was taken about 1 1/2 weeks after my treatment of Winrho SDF 3,000mcg was the dose.


Just one small issue this time normally after the treatment I have the blood in the urine sometime around the 24hr mark. This time that wasn't so prominent but I noticed an issue with my kidneys. They didn't seem to be working properly I didn't seem to be producing enough urine. Than somewhere between the 48-72hr mark it is like my kidney's all of a sudden started working.


I have the product monograph to read so far I have read nothing that gives a warning on the kidneys.


Yes I am doing the happy dance! I may even get the flu shot at work since my counts are way up there!

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  • dru
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  • I developed hemolytic anemia in 1999 and ITP in 2005. Treatments have been splenectomy, prednisone, IVIG, and Rituxan.
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12 years 4 months ago #38472 by dru
Replied by dru on topic Are you sitting down? (count)
Julia

Wow, that is such great news! Enjoy your good counts, maybe since the response was so great you will have a very good long time before having to treat again.

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Platelet Disorder Support Association

Platelet Disorder Support Association
8751 Brecksville Road Suite 150
Cleveland, OH 44141
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IMPORTANT!

The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.