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Mouth sores question

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12 years 5 months ago #38321 by Mcochran
Mouth sores question was created by Mcochran
I've been reading and doing a little posting here for the last 2 months since my wife was diagnosed.

One thing I haven't seen mentioned much is getting sores in the mouth when counts are very low.

Wife is currently in the hospital and was admitted there with a count of 2, minor rectal and vaginal bleeding and mouth sores.

The bleeding has ceased but the mouth sores are still present and they are really the worst symptom she has associated with her ITP. I see a lot of people posting about how they don't even treat if they are above X platelets, but I cannot imagine people not doing something if they had the type of sores she has in her mouth.

So I'm wondering if these mouth sores are uncommon? Do you all deal with that? She's a pretty brave gal and I think she could waive treatment if she was able to hover around 10+.

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  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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12 years 5 months ago - 12 years 5 months ago #38323 by Sandi
Replied by Sandi on topic Mouth sores question
Mouth sores are pretty common with counts below 5 or 10k. They are considered to be a 'wet' symptom and I think we'd all agree we'd treat with that going on. Mouth sores do not happen every time counts get low, but if it does, it's best to get counts up.

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  • dru
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  • I developed hemolytic anemia in 1999 and ITP in 2005. Treatments have been splenectomy, prednisone, IVIG, and Rituxan.
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12 years 5 months ago #38342 by dru
Replied by dru on topic Mouth sores question
I get mouth sores with counts 10 and other. They are uncomfortable and worrisome too. Hope you are able to get her counts up soon. For me anyway the mouth sores go away pretty quick when counts go up even a little.

I do salt water rinses. Makes it feel a it better.

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12 years 5 months ago #38355 by Vdeutsch85
Replied by Vdeutsch85 on topic Mouth sores question
I also had mouth sores with counts under 10.I was told by a specialist that this was an indication to seek treatment. However, mine are not painful. As the counts go up, they go away pretty quickly for me.

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12 years 4 months ago #38586 by yogesh
Replied by yogesh on topic Mouth sores question
Last week my wife had a count of 3k but she didn't had any mouth sores. But now her count is 8k and she has few mouth sores. She has completed her four infusion of rituxi last Tuesday.

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