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Are your symptoms consistent?

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12 years 6 months ago #37300 by Katsim
Are your symptoms consistent? was created by Katsim
So, what I want to know is, are your symptoms consistent at certain counts? Mine used to be pretty easy to read;

Under 10k purpura/petechia spreading up my legs - it even started in my hands when I was diagnosed with a count of 1
Under 20k - easy bruising and some spontaneous bruising
Under 30k - just easy bruising but otherwise nothing

I stopped steroids 6 weeks ago and I'm just on mycophenolate. My counts the last two weeks have been 26 and 22, but I already have petechia on my legs and a couple in my mouth (but those in my mouth have all been tiny and vanished within 24 hours).

I'm not desperately worried about the petechia in itself, but why has it started at higher counts than it did on steroids?

Grrrrrr.... Just when I think I've got it sussed!

Have your symptoms ever changed and what are they at certain counts? Thanks :-)

Lowest count 1. Highest count 207 (ivig) Indium scan showed predominantly splenic destruction. No meds currently, just seeing how things go.

"Life isn't about waiting for the storm to pass - it's about learning to dance in the rain".

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12 years 6 months ago - 12 years 6 months ago #37320 by Dean
Replied by Dean on topic Are your symptoms consistent?
Bruising and a few blood blisters in the mouth is my consistency when I am really low, like under 10k. Otherwise I am usually just more tired when counts are 70k or lower.

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