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New treatments

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12 years 9 months ago #34997 by tigereyes
New treatments was created by tigereyes
It's been a while. I just had baby boy #2 in October. Since then my counts have been low. Really low. I've avoided treatment since I'm nursing. I've come to the decision that I cannot safely go on with counts of 11. I'm now getting migraines with stroke like symptoms and they worry about a bleed.

So I guess my question is which is easier? The injection or the pills? No late or the other one. I've never considered these so I'm at a loss of which to try. I'm leaning towards the injection since in horrible with remember daily meds.
Jennifer

Mother of 2 boys
Last Rituxan 12/09/09--3rd time around with not much sucess
Winrho-09/25/09 Didnt work.
IVIG--Countless times

Latest counts 8 4/2013-just started Promatca
Diag. 9/2006

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12 years 9 months ago #34998 by CindyL
Replied by CindyL on topic New treatments
Congratulations on baby #2, Jennifer! Can't help with your questions as I haven't had to treat since I did the Rituxan 3 years ago.

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12 years 9 months ago #35022 by Winnifred
Replied by Winnifred on topic New treatments
Injection or pills would depend on type of medication.



My treatment of choice would be rituxan gave me long remission but when I'm really low and need a fast fix I use Winrho they start an IV takes less than 1/2 hr and within 24-48hrs i'm way up in the safe range!

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  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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12 years 9 months ago #35140 by Sandi
Replied by Sandi on topic New treatments
Hey Jennifer! Congrats on the baby! :laugh:

There are a lot of posts on the pros and cons of both N-Plate and Promacta. You'd have to weed through them.

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12 years 8 months ago #35660 by tigereyes
Replied by tigereyes on topic New treatments
I've decided to wait until October to start n Plate. I enjoy nursing too much. So for the time being I will do IVIG and steroids as needed right now.

Thanks here is Logan not bad for a 33 weeker huh?
Jennifer

Mother of 2 boys
Last Rituxan 12/09/09--3rd time around with not much sucess
Winrho-09/25/09 Didnt work.
IVIG--Countless times

Latest counts 8 4/2013-just started Promatca
Diag. 9/2006

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12 years 8 months ago #35664 by Jacchab
Replied by Jacchab on topic New treatments
How beautiful. Good luck Jennifer

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Platelet Disorder Support Association

Platelet Disorder Support Association
8751 Brecksville Road Suite 150
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IMPORTANT!

The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.