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3 weeks

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12 years 10 months ago #34325 by jdarlin02
3 weeks was created by jdarlin02
3 weeks post op splenectomy and partial hyst (sorry guys) but it is what it is. 3 weeks of bumping and normal activity on a farm and no bruises. It was nice and I remember what it was like to have a "normal" no freak out day.
Then yesterday happened. Got a scrape that didnt stop bleeding as quickly as the rest in the past three weeks. Popped a zit and it bruised. Woke up with a bloody nose.
Back to my normal now.
See hemo in September. No way am I going back earlier unless I end up in the e.r. and cant avoid it.
I knew it wasnt going to last but what a disappointment just the same.

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  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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12 years 10 months ago #34328 by Sandi
Replied by Sandi on topic 3 weeks
I'm sorry to hear that. Sounds like you had to do what you had to do. I hope things get better - sometimes that happens!

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12 years 10 months ago - 12 years 10 months ago #34331 by jdarlin02
Replied by jdarlin02 on topic 3 weeks
Thanks Sandi.
I would have posted earlier about it but Im embarrassed I went the route I knew beforehand wouldnt work, even though four hemos all told me the same thing. :blush:
At least Im menstraul free and Im not dead so thats good (Scared to death of hospitals and surgeries).
The surgeon and the gyn both told me that my spleen was 2-3 times larger than it should have been. So I guess it wasnt really helping. ?
Have a great weekend all. Im going to go sky diving. ;)

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12 years 10 months ago #34332 by Winnifred
Replied by Winnifred on topic 3 weeks
Can we pray that you bleed because you scraped yourself and a nose bleed is just a nose bleed!

Good luck waiting I hope you don't need to see anyone sooner!

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12 years 10 months ago #34333 by jdarlin02
Replied by jdarlin02 on topic 3 weeks
Thank you Winnifred.
Any prayers are most appreciated!!

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12 years 10 months ago #34335 by eklein
Replied by eklein on topic 3 weeks
When your spleen is enlarged that's more than plain old ITP, I think if my spleen was enlarged like that I would strongly consider the surgery too.
Erica

And she was!
Diagnosed May 2005, lowest count 8K.
4/22/08: 43K (2nd Rituxan)
10/01/09: 246K, 1/8/10: 111K, 5/21/10: 233K
Latest count: 7/27/2015: 194K

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  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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12 years 10 months ago #34336 by Sandi
Replied by Sandi on topic 3 weeks
I agree with Erica. If the spleen was enlarged, it's possible that it should have been removed anyway.

Four hemo's told you it wouldn't work in raising your counts?

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12 years 10 months ago #34341 by jeffrey71
Replied by jeffrey71 on topic 3 weeks
jdarlin02,

Don't beat yourself up. IMHO you did the right thing. A spleen that enlarged is not a normal situation. Just go forward and do what you can and what you want to do! I have added you to my prayer list! BTW, I think my platelets are tanking a bit too, and I am doing the same thing you are, waiting for my appointment in September! ;) Hang tough!

Jeffrey

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12 years 10 months ago #34377 by jdarlin02
Replied by jdarlin02 on topic 3 weeks
Thanks Jeffrey. Prayers that we'll both hold out well way past September! That we all will!

Four hemos told me I needed to get the surgery. Their reassurances on whether or not it would get my counts up and for how long of course was on the fence. The only thing they can guarantee me is when my next appointment is lol.

Thanks Erica. Thanks all of you. It's nice to get sympathy from others who understand.

Wonder what was wrong with my spleen then.... :unsure:

Hope you all had a great holiday. Our neighbors shot off fireworks until 2 a.m. so I went out and mowed early! Arent I a stinker. :P

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