Platelet Disorder Support Association

Join Us:

Membership Matters

Support Us:

Make a Donation
    Remember Me     Forgot Login?   Sign up   •  Web site Help & Info

!!! DISCUSSION GROUP RULES !!!

1. You must be a registered website user in order to post and comment. Guests may read only.
2. Be kind and helpful, not rude and cynical.
3. Don't advertise or promote anything. You will be banned from the group.
4. Report problems to the moderators. THANK YOU!

Question on lupus

  • Kelirae24
  • Topic Author
  • Offline
  • I'm 31 years old and a mom to two awesome little boys, I was diagnosed with itp when I was 17 years old. With no treatment my counts are 0-5 I am currently on nplate and I had a splenectomy in 2004
More
12 years 10 months ago #33654 by Kelirae24
Question on lupus was created by Kelirae24
I have noticed some people have itp and lupus does anyone know the connection? Does lupus cause itp or does itp cause lupus? Just wondered if anyone could explain it to me I'm very interested

Thanks
Keli

Please Log in or Create an account to join the conversation.

More
12 years 10 months ago #33655 by CindyL
Replied by CindyL on topic Question on lupus
Sandi is the best one to answer this question as she has both. Do you suspect you have it, or just curious?

Please Log in or Create an account to join the conversation.

  • Sandi
  • Offline
  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
More
12 years 10 months ago #33658 by Sandi
Replied by Sandi on topic Question on lupus
ITP can be a symptom of Lupus and is one of the criteria for a Lupus diagnosis (along with many other things). Neither 'causes' the other, but some people with ITP do eventually go on to a Lupus diagnosis. Thankfully, that is rare.

Please Log in or Create an account to join the conversation.

  • Kelirae24
  • Topic Author
  • Offline
  • I'm 31 years old and a mom to two awesome little boys, I was diagnosed with itp when I was 17 years old. With no treatment my counts are 0-5 I am currently on nplate and I had a splenectomy in 2004
More
12 years 10 months ago #33659 by Kelirae24
Replied by Kelirae24 on topic Question on lupus
I was just curious, and sandi, I'm very sorry you have to deal with both

Please Log in or Create an account to join the conversation.

  • Sandi
  • Offline
  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
More
12 years 10 months ago #33662 by Sandi
Replied by Sandi on topic Question on lupus
Well, one good thing is that ITP went into remission right before I was diagnosed with Lupus, so ITP hasn't been a problem. Lupus sure has been though!

I'm sorry you have to deal with both low counts and clotting.

Please Log in or Create an account to join the conversation.

  • Kelirae24
  • Topic Author
  • Offline
  • I'm 31 years old and a mom to two awesome little boys, I was diagnosed with itp when I was 17 years old. With no treatment my counts are 0-5 I am currently on nplate and I had a splenectomy in 2004
More
12 years 10 months ago #33663 by Kelirae24
Replied by Kelirae24 on topic Question on lupus
Sandi
I don't have a clotting problem luckily I have been tested for that it was just that one time where I was given too much nplate Thank goodness

Please Log in or Create an account to join the conversation.

  • Sandi
  • Offline
  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
More
12 years 10 months ago #33664 by Sandi
Replied by Sandi on topic Question on lupus
I hope so!

Please Log in or Create an account to join the conversation.

You’re not alone. We have answers!
Contact PDSA to connect with life altering information, resources and referrals. 440.746.9003 (877.528.3538 toll-free) or pdsa@pdsa.org.

Platelet Disorder Support Association

Platelet Disorder Support Association
8751 Brecksville Road Suite 150
Cleveland, OH 44141
440.746.9003  |  pdsa@pdsa.org
The Platelet Disorder Support Association is a 501(c)3 organization and donations are tax deductible to the fullest extent allowed by law.

© Copyright 1997 - 2026, Platelet Disorder Support Association. All rights reserved.

IMPORTANT!

The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.