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Vitamin B12 deficiency & ITP

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12 years 11 months ago #33580 by Rose
Vitamin B12 deficiency & ITP was created by Rose
Hello everyone. Today I heard a Physician on the radio speaking about Vitamin B12 deficiency and autoimmune disorders. I am wondering if anyone has information regarding B12 and ITP? I have done several internet searches and indeed there is some interesting info out there. Any input from our ITP community would be wonderful (for all of us). Thank You and have a great evening!
Rose :cheer:

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  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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12 years 11 months ago #33581 by Sandi
Replied by Sandi on topic Vitamin B12 deficiency & ITP
All I can add to this is that many people with autoimmune disorders also tend to have vitamin deficiencies. I see it here all the time and have the same problem. Getting the vitamin level to normal does not help with the autoimmune disorder though.
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12 years 9 months ago #35286 by Lady Elly
Replied by Lady Elly on topic Vitamin B12 deficiency & ITP
Hi Rose,
My hematologist checked my B12 level and it was low to depleted in Nov. 2011. I started having B12 injections every 2 weeks and my platelets went up. I dropped the B12 injections to once a month and my platelets went down to 6K.
During 2012, most of the year they were 6K to 10K.
Last July 2012, I started the B12 injections every 2 weeks and again the platelets went up to 26K at first than dropped.
January 2013, I started on B6 plus still taking B12 injections every 2 weeks and my platelets jumped to 30K. Than they went back down to 10K by April 2013 as I had a cold. July 22, 2013, platelets were up to 23K which I am so thankful for platelets to be 20K or above.
If you have B12 levels checked, would know if it were necessary to have the B12 injections.
Good luck!
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IMPORTANT!

The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.