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Really just have to vent

  • Kelirae24
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  • I'm 31 years old and a mom to two awesome little boys, I was diagnosed with itp when I was 17 years old. With no treatment my counts are 0-5 I am currently on nplate and I had a splenectomy in 2004
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12 years 11 months ago #33528 by Kelirae24
Really just have to vent was created by Kelirae24
Ok so my doctor left the practice he was in and moved to another country, I got stuck with another doctor that I could not stand so I switched to another practice that could not get my n plate so now I am finally seeing a new dr tomorrow and fingers crossed because I have been without my n plate for two weeks now and am covered in peteciae. It's so frustrating when doctors offices don't understand the severity that if we don't get our medicine we will end up in the hospital and we have lives too ok I'm done thanks for reading lol

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  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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12 years 11 months ago #33542 by Sandi
Replied by Sandi on topic Really just have to vent
Sorry to hear that, Kelirae. How are you recovering from your clotting?

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  • dru
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  • I developed hemolytic anemia in 1999 and ITP in 2005. Treatments have been splenectomy, prednisone, IVIG, and Rituxan.
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12 years 11 months ago #33547 by dru
Replied by dru on topic Really just have to vent
Sorry to hear that....so very frustrating! Hope it works out with new doc.

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12 years 11 months ago #33549 by jeffrey71
Replied by jeffrey71 on topic Really just have to vent
I am sorry to hear all that. Stay after them and let us know how it plays out!

Jeffrey

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12 years 11 months ago #33570 by Vdeutsch85
Replied by Vdeutsch85 on topic Really just have to vent
Hey we all have to vent sometimes with this crazy little thing called ItP. Just keep calling around until you get in somewhere. I was off Nplate for 2 weeks a few weeks ago ( my doc thought it was ok since I was at 151) well huge mistake I was at 4 by the next week. We nplaters need our weekly fix! Are you feeling ok? I was so fatigued and achy that week of 4. Hope you feel better than I did!

Valerie

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  • Kelirae24
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  • I'm 31 years old and a mom to two awesome little boys, I was diagnosed with itp when I was 17 years old. With no treatment my counts are 0-5 I am currently on nplate and I had a splenectomy in 2004
More
12 years 10 months ago #33637 by Kelirae24
Replied by Kelirae24 on topic Really just have to vent
Finally got into doctor Friday I was down to three, I got 2 micrograms per kilo of nplate and I am covered in Petechiae still and I moved this weekend. So I am hoping this nplate kicks in soon and sandy no more clotting issues since 2010 my drs will only give me 1 or 2 mics in fear that will happen again, the ony other thing that works for me is Ivig but it only lasts a week so I keep that for absolute emergencys thanks for letting me vent everyone
Ps I love my new doc
Keli

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  • Kelirae24
  • Topic Author
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  • I'm 31 years old and a mom to two awesome little boys, I was diagnosed with itp when I was 17 years old. With no treatment my counts are 0-5 I am currently on nplate and I had a splenectomy in 2004
More
12 years 10 months ago #33639 by Kelirae24
Replied by Kelirae24 on topic Really just have to vent
Oh my gosh I thought I was sore from moving but that makes sense I didn't do that much my back is killing me I'm achy everywhere and been exhausted. I want a back massage so bad but I know I'll get bruised lol

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12 years 10 months ago #33643 by Vdeutsch85
Replied by Vdeutsch85 on topic Really just have to vent
My doctor said Nplate could take 7-10 days to kick back in so be patient and feel better!

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12 years 10 months ago #33675 by Winnifred
Replied by Winnifred on topic Really just have to vent
I completely understand about finding a right doctor. Vent away is that what site's like this are for? Well at least we understand your need for venting!


Question this N-plate is it an injection or pill?

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  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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12 years 10 months ago #33676 by Sandi
Replied by Sandi on topic Really just have to vent
Injection. Once a week.

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12 years 10 months ago #33682 by jeffrey71
Replied by jeffrey71 on topic Really just have to vent
Kelirae,

How are you feeling today? Still sore?

Jeffrey

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