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Blisters

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13 years 4 days ago #32279 by marosa
Blisters was created by marosa
Hi have been on Nplate since August 2012 count was at 520 on Wednesday went toITP clinic yesterday had been on 500 dose for last to weeks because count was high dose reduced to 400 this morning I have small white blister in one cheek of my mouth no blood has anyone else experienced this

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  • karenr
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  • Diagnosed in 2000, at 59, after being on moderately high doses of NSAIDs for arthritis. Splenectomy and rituxan both failed (2004). Did well on prednisone till summer 2018--then terrible reactions. Promacta since 11-19.
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13 years 3 days ago #32289 by karenr
Replied by karenr on topic Blisters
I have small and medium white blisters all over the inside of my mouth--and many predate my ITP. Mine are the sort that don't go away. Not all doctors and dentists have agreed with my assessment of the situation--I am pretty sure that mine were caused by nuts--walnuts and pecans. If I accidentally eat these and can't wash my mouth out soon enough, then a new one appears.

If you're worried about the blister, have a doctor check it out. I suspect there are many possible causes for your symptom.
The following user(s) said Thank You: marosa

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13 years 3 days ago #32291 by marosa
Replied by marosa on topic Blisters
Hi more blisters today blood ones this time count checked out at ITP clinic today 526 I was one day late taking dose last week had a dose yesterday so could be fluctuating between doses consultant couldn't explain having blood blisters with such a high count

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13 years 3 days ago - 13 years 3 days ago #32299 by Ann
Replied by Ann on topic Blisters
It gives me the creeps when people say they have such a high count and are still using Nplate. Guidelines say if the count is over 250 then stop until the count falls to below 150. I don't understand why doctors don't stick to this.

The drug's SPC is here..

www.medicines.org.uk/emc/medicine/23117/SPC/Nplate+with+Reconstitution+Pack

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13 years 2 days ago #32319 by Vdeutsch85
Replied by Vdeutsch85 on topic Blisters
Hmmm do you think it could be a reaction to such a high dose of Nplate?

My counts were 198 last week and the hematologistst did not give me Nplate. I kind of argued a little with him because I have been high and by the next week been in single digits so I probably should have had it.Thanks Ann for sharing. I will bring article to the doctor on Tuesday!

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  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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13 years 2 days ago #32320 by Sandi
Replied by Sandi on topic Blisters
Using N-Plate with high counts is just as dangerous as having low counts. Instead of a bleeding risk, you can have a clotting risk.

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13 years 2 days ago #32323 by Ann
Replied by Ann on topic Blisters

Vdeutsch85 wrote: Hmmm do you think it could be a reaction to such a high dose of Nplate?

My counts were 198 last week and the hematologistst did not give me Nplate. I kind of argued a little with him because I have been high and by the next week been in single digits so I probably should have had it.Thanks Ann for sharing. I will bring article to the doctor on Tuesday!


Those are the manufacturer's UK guidelines. Last time I looked they were different from those issued in the US. Also as you are also taking an immunosuppressant, if that is working your platelets may not be all new and large, and clotting may not be an issue. If the lab looked at how large your platelets are under the microscope, they could tell to some degree if it was the Nplate or the immunosuppressant working.
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13 years 1 day ago - 13 years 1 day ago #32337 by Vdeutsch85
Replied by Vdeutsch85 on topic Blisters
I don't know what I wold do without all of you, thank you for your continued information and support. I will try to find the us guidelines but the uk's make perfect sense to me!

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