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Dissability (considered)

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13 years 3 weeks ago #32050 by phillipsonautumnl
Dissability (considered) was created by phillipsonautumnl
Does anyone know if ITP
is considered a disability for govt assistance. i have had it for 2 yrs now and the disability case worker said because it was short term i didn't qualify..but i have now had 3 blood clots in my longs, forgot how to walk and my platelets just dropped again to 13 thousand i started to having taking steroids again. now on my 2nd months and now i just finished with my last IVIG treatment im not able to work at the moment and not sure when i had to stop school also... I'm bloated and swollen tiered and just don't know what to do anymore.
does anyone know of anything or any suggestions

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  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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13 years 3 weeks ago #32053 by Sandi
Replied by Sandi on topic Dissability (considered)
A person can get social security disability if they can meet the following criteria:

"To meet the requirements of this listing, you must have a platelet count that is repeatedly below 40,000 AND have at least one of the following symptoms: at least one spontaneous hemorrhage which required transfusion within five months prior to filing for disability benefits OR you must have had intracranial bleeding within twelve months prior to filing for disability benefits."

www.disability-benefits-help.org/disabling-conditions/chronic-thrombocytopenia-and-social-security-disability

It is a difficult process and hard to prove. You basically have to prove that you cannot work any job, not just the one you have now. There is a five month waiting period before you will get an answer. If you are denied, you can appeal and that can take up to a year or more. There is also the issue of health insurance, you lose that if you are insured through your employer unless you pay for COBRA.

I would suggest that you meet with an attorney for a consultation. They can usually give you an idea of whether or not you would qualify.

Are you on blood thinners? If so, that might help your case.

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  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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13 years 2 weeks ago - 13 years 2 weeks ago #32058 by Sandi

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13 years 2 weeks ago #32062 by phillipsonautumnl
Replied by phillipsonautumnl on topic Dissability (considered)
i was on blood thinners for a year but the doctor took me off them..but in the last month i have been put back on steroids can't work to much because the IVIG...I'm so weak and am starting to have my legs bow from the steroids and on top that I'm stuck on the steroids for another month and am breaking out in some sort of rash because of the steroids...i have a govt case worker and she told me i should contact a disability lawyer also...i just not sure ware to start but i will with the sites you gave me thank you.

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  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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13 years 2 weeks ago #32065 by Sandi
Replied by Sandi on topic Dissability (considered)
Yes, start with the attorney. They can pretty much tell you at the meeting whether or not you have a shot at being approved. Make sure you get one who is experienced in disability cases.

Do you have a job where you hsve to stand all day?

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13 years 2 weeks ago #32069 by phillipsonautumnl
Replied by phillipsonautumnl on topic Dissability (considered)
yes i actually do stand on my feet all day i work at a gas station

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  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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13 years 2 weeks ago #32071 by Sandi
Replied by Sandi on topic Dissability (considered)
The problems you might have are:

1. They will state that you can perform a sitting job.

2. Prednisone is not expected to be an ongoing, continuous thing. You will be off of it at one point, probably before you even get a decision.

What other treatments have you tried?

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