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possible help

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13 years 1 month ago #31440 by phillipsonautumnl
possible help was created by phillipsonautumnl
hey
is it possible, well not possible but likely that after you have itp and then refractory itp and taking hydroxeria, and having your spleen removed that your platelets can still just drop out of NO WARE in DEC I WAS AT 250 THOUSAND AND STILL ON HYDROXERIA BUT CHECKED ON FRIDAY 40THOUSAND AND 20 THOUSAND IS BACK IN THE HOSPITAL WILL ME... my oncologist is out town till Monday but i'm freaking out...and i'm bruising...
anyone have any answers ..i don't want to go threw this again....i'm not sure if i even would have the strength this time

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13 years 1 month ago #31443 by eklein
Replied by eklein on topic possible help
Looks like serious medication: Hydroxyurea may cause severe, life-threatening side effects, including a low blood count (decrease in the number of blood cells in your body). Tell your doctor if you have or have ever had a blood disease.
www.nlm.nih.gov/medlineplus/druginfo/meds/a682004.html
And prescribed for some very serious conditions.
Hope you are feeling better soon.
Erica
And she was!
Diagnosed May 2005, lowest count 8K.
4/22/08: 43K (2nd Rituxan)
10/01/09: 246K, 1/8/10: 111K, 5/21/10: 233K
Latest count: 7/27/2015: 194K

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13 years 1 month ago #31444 by phillipsonautumnl
Replied by phillipsonautumnl on topic possible help
all i know is in dc the doc..said i would have to be on them for the rest my life...but i guess that might change now

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  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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13 years 1 month ago #31453 by Sandi
Replied by Sandi on topic possible help
It looks like this medication is used to treat some serious conditions. It might be more beneficial to continue taking the med and deal with the low platelets. You'll have to discuss that with your doctor. Sometimes people have to balance two medical conditions, and if one is more serious than the other, you have to weigh the benefits vs. risks and do whichever is best for you in the long run.

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Platelet Disorder Support Association

Platelet Disorder Support Association
8751 Brecksville Road Suite 150
Cleveland, OH 44141
440.746.9003  |  pdsa@pdsa.org
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IMPORTANT!

The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.