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ITP and Headaches?

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13 years 2 months ago #31113 by laurensparkles
ITP and Headaches? was created by laurensparkles
Hi everyone!

My name is Lauren and I was diagnosed with ITP in October of 2011 when I was 17. Now at almost 19, I am still riding the roller coaster ride of ITP but thankfully haven't been put on treatment since last March. My counts stay in the 25-40,000 zone. My hematologist now has my counts checked every month....

At the end of January my count jumped up to 69,000!! The highest my platelets have been without treatment since diagnosis!! But, sadly at this months' check I had dropped down to 37,000 :(.

I was wondering if anyone else deals with headaches when their counts drop off. (No recent head trauma and no symptoms indicating a serious problem)... it's not a massive headache...just an annoying ache that develops over the day...for the past five days...

Anyone else out there?

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13 years 2 months ago #31115 by eklein
Replied by eklein on topic ITP and Headaches?
Yes, I had more migraines with low counts. Also, even the smallest amount of alcohol would leave me with a migraine (I'm SURE that isn't your problem!!)
Erica
And she was!
Diagnosed May 2005, lowest count 8K.
4/22/08: 43K (2nd Rituxan)
10/01/09: 246K, 1/8/10: 111K, 5/21/10: 233K
Latest count: 7/27/2015: 194K

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  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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13 years 2 months ago #31121 by Sandi
Replied by Sandi on topic ITP and Headaches?
I could say that the stress of knowing my counts were down (and treatment was coming) caused headaches, but not the counts themselves.

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13 years 2 months ago #31123 by DTMEDIC
Replied by DTMEDIC on topic ITP and Headaches?
I had a dull headache when mine was so low, but not migraine-like.

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13 years 2 months ago #31160 by meredithjane
Replied by meredithjane on topic ITP and Headaches?
Glad someone brought this up. Have been having regular headaches lately - wake up with one which gradually dissipates during the day. Thought I was dehydrated (summer here) but platelet count last week was down to 25. Ho hum . . So now I am being a good girl :silly: until another blood test next week. Hope it is back up to 30 - don't need any more drama in my life.
mj

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  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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13 years 2 months ago #31162 by Sandi
Replied by Sandi on topic ITP and Headaches?
Could be those platelet microparticles!

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13 years 2 months ago #31166 by meredithjane
Replied by meredithjane on topic ITP and Headaches?
Did you mean 'micro parties'? Best I go easy on the wine . .

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13 years 1 month ago #31441 by Pinkroselady
Replied by Pinkroselady on topic ITP and Headaches?
Finally! Someone else who shares my daughter's dilemma. She was diagnosed in October 2012 with ITP. Since then she has been fighting migraine like headaches. We have an appt with neurologist in a month. She also has had no head trama. Her count bounces all around also. The Tylenol does not help her at all

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13 years 1 month ago #31442 by Pinkroselady
Replied by Pinkroselady on topic ITP and Headaches?
Her ITP doctor thinks it could be the prednisone but wants her to see neurologist. He refuses to treat her headaches. Oh and she had a normal CT scan

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Platelet Disorder Support Association

Platelet Disorder Support Association
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IMPORTANT!

The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.