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Thursday Redux

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13 years 2 months ago #31080 by jeffrey71
Thursday Redux was created by jeffrey71
Good Evening!

Well another doc visit today and the envelope please............. Platelets at 76! Whoo Hoo! Best yet! Here is the game plan my doc wants to put forth. I am now tapering off of the prednisone! Can I get an AMEN??? 2 week taper. Then another CBC. If the counts are over 30 then we will watch and see, if lower than that we will be heading towards the other meds and/or chemo. Spleenectomy as a last resort. He is a good doc and I trust him.

So not too bad a visit! I can now really train for the season! it is a lot of work being a "trophy husband"!

Everyone take care!

Jeffrey

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  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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13 years 2 months ago #31088 by Sandi
Replied by Sandi on topic Thursday Redux
Good for you! I hope you're not thinking about Vincristine when you say 'chemo'....there are other things to try first!

Good luck with the training!

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13 years 2 months ago #31096 by jeffrey71
Replied by jeffrey71 on topic Thursday Redux
Hi Sandy,

I am looking at all of the options. I will be sending you a note.

Have a good weekend! Sending you gray weather. No snow, just gray!

Jeffrey

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  • dru
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  • I developed hemolytic anemia in 1999 and ITP in 2005. Treatments have been splenectomy, prednisone, IVIG, and Rituxan.
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13 years 2 months ago #31100 by dru
Replied by dru on topic Thursday Redux
Jeffrey,

That is great news, have fun training!

It is great to have a doc you trust. Mine has gotten me through the past 13 years of ITP and Hemolytic anemia. It makes it so much easier to manage this stuff with a good doctor.

Dru

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13 years 2 months ago #31105 by meredithjane
Replied by meredithjane on topic Thursday Redux
Well done, Jeffrey, must be your VERY positive disposition!
mj

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  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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13 years 2 months ago #31109 by Sandi
Replied by Sandi on topic Thursday Redux
Okay, got the gray that day, but you didn't warn me about the snow squalls and cold wind we had today. Better get on the ball! Better yet, send some sun already!

Did you pass me a note? If so, where did you put it?

Oh, please save Vincristine as an absolute last resort. Most never have to go there and you have a ways to go before that option!

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13 years 2 months ago #31119 by DTMEDIC
Replied by DTMEDIC on topic Thursday Redux
Jeffrey...will be praying for good results with your prednisone taper and that platelets keep themselves in the safe range. Good Luck! :)

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The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.