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ITP AND OTHER RELATED ILLNESSES

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13 years 2 months ago #30790 by MKC
ITP AND OTHER RELATED ILLNESSES was created by MKC
Has anyone experienced any other illnesses after being diagnosed with ITP. I was diagnosed 25 years ago, went into remissiom and then two years ago it returned with a vengence. But at this time I've been diagnosed with Epstein bar and now my toes and fingers are going numb, turning white and blue, feel tired all the time and joint pain. Was wondering if it had anything to do with the ITP. Has anyone else experienced anything like this.

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13 years 2 months ago #30797 by Bunnie
Replied by Bunnie on topic ITP AND OTHER RELATED ILLNESSES
Many of us on the board have more than one autoimmune disease. In my cause it is also Hashimoto's thyroiditis. While it may be interrelated, it's unlikely that ITP caused what your describing.

thyroid.about.com/cs/fibromyalgiacfs/a/cfsfibrothyroid.htm
"I am an old man and have known a great many troubles, but most of them have never happened.\" — Mark Twain\\\\\\"Worry is a misuse of the imagination.\" — Dan Zadra
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13 years 2 months ago #30801 by MKC
Replied by MKC on topic ITP AND OTHER RELATED ILLNESSES
Thank you so much for your response.

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  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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13 years 2 months ago #30821 by Sandi
Replied by Sandi on topic ITP AND OTHER RELATED ILLNESSES
MKC - the white and blue fingers and toes sounds like Raynauds. Have you looked into that?

I was diagnosed with Lupus 8 years after ITP. Sometimes the CFS and fibromyalgia diagnoses are really a slow developing Lupus. That's what happened to me and several others. Good luck.

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13 years 2 months ago #30849 by MKC
Replied by MKC on topic ITP AND OTHER RELATED ILLNESSES
Thank you Sandi. I went to the Doctor today and he confirmed the Raynauds. He is also testing further for lupus and a few other things he didn't mention. I should find out something by the end of the week.

Melinda

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  • dru
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  • I developed hemolytic anemia in 1999 and ITP in 2005. Treatments have been splenectomy, prednisone, IVIG, and Rituxan.
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13 years 2 months ago #30850 by dru
Replied by dru on topic ITP AND OTHER RELATED ILLNESSES
In addition to ITP I have hemolytic anemia, fibromyalgia, vertigo migraines, and raynuads. For the raynuads I always keep some kind of hand warmer, a microwaveable heat pad when I am home and when I'm out some of those instant warmers they make for hikers and skiers. It really helps and keeps from progressing from white to blue.
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13 years 2 months ago #30851 by Acarrerow
Replied by Acarrerow on topic ITP AND OTHER RELATED ILLNESSES
Dru,
This is the first time I've seen someone else with hemolytic anemia on here. Was it a result of ivig treatments? I had a reaction to the ivig and ended up with hemolytic anemia. My hemoglobin was 1.6 at its lowest in April.

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  • dru
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  • I developed hemolytic anemia in 1999 and ITP in 2005. Treatments have been splenectomy, prednisone, IVIG, and Rituxan.
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12 years 11 months ago #32483 by dru
Replied by dru on topic ITP AND OTHER RELATED ILLNESSES
Sorry, I just saw this post from a while ago. No I did not develop hemolytic anemia from IVIG. I developed it in 1999 and was treated with prednisone and then a splenectomy. I developed ITP in 2005. I'm not sure what my hemoglobin was, hematocrit was 17 when diagnosed and was in the hospital.

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12 years 11 months ago #32495 by Vdeutsch85
Replied by Vdeutsch85 on topic ITP AND OTHER RELATED ILLNESSES
In addition to ITP, I have Grave's disease. I was diagnosed at 22 and went into remission at 24. I was diagnosed with ITP at 27. Unfortunately, in our cases our immune systems do not like us. Hopefully someday we will have answers as to why our immune systems do not like us. I think it def has to do with environmental factors.

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