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Center for Excellence for ITP Patients

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13 years 3 months ago #30235 by nilsenjr
Center for Excellence for ITP Patients was created by nilsenjr
I have had ITP for many years but never was a problem until now. My current counts range 20-40 and I am 68. I am working with several Hematologists who are OK, but would really like to go the the best in the ITP field for treatement options- As an example, if you have cancer- I would go to MAYO, MD Anderson, or Johns Hopkins. What is the centers/doctors for excellence for ITP.. Can anyone provide suggestions.
??

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13 years 3 months ago #30259 by chasty
Replied by chasty on topic Center for Excellence for ITP Patients
I actually see 2 separate hematologists at Vanderbilt Ingram Cancer Center for my ITP. One of them I go to his clinic weekly for my blood work and Nplate shot and the other one ITP is one of her specialties. I highly recommend Vanderbilt Ingram Cancer Center in Nashville, TN!

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13 years 3 months ago #30261 by DeeDee Marie
Replied by DeeDee Marie on topic Center for Excellence for ITP Patients
Most of the doctors on this board are the top specialists in the United States. That could also be a start for you.

Dee Dee
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  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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13 years 3 months ago #30267 by Sandi
Replied by Sandi on topic Center for Excellence for ITP Patients
I would say anywhere where the doctor is familiar with all current ITP treatments and has treated a few ITP patients. Bigger does not necessarily mean better. I agree with DeeDee as far as a starting point.

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Platelet Disorder Support Association

Platelet Disorder Support Association
8751 Brecksville Road Suite 150
Cleveland, OH 44141
440.746.9003  |  pdsa@pdsa.org
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IMPORTANT!

The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.