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looking to taper off prednisone..

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13 years 3 months ago #30096 by kwright
looking to taper off prednisone.. was created by kwright
My mom is 60 and diagnosed with itp in 2008

Splenectomy didn't work. She has had two IVIG TREATMENTS when her count dropped to 1,She is currently on 4mg prednisone. She tried to taper to 3mg last week and her count dropped dramatically to 50k from 160k, similar to her past relapses. She has stepped it up to 6mg this morning. I am afraid that this is not going to help her and she is heading to 1 and another ER ROOM visit. She does not have insurance. should she step up her medication to 10mg. please help.

Her long term goal is to stop prednisone given the long term effects and is looking for alternate TREATMENTS.

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  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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13 years 3 months ago #30103 by Sandi
Replied by Sandi on topic looking to taper off prednisone..
It would be really unusual for a count to drop so much from just a 1 mg. taper. 1 mg. is a teeny amount of Prednisone and most would have no response at all, either up or down, from that much Prednisone.

4 mg's is also a pretty low dose. You're right, it's not good to be on any steroid long-term, but that low of a dose may not do much damage. The human body produces about 7.5 mg's of cortisol daily, so any amount of Prednisone below that isn't a lot.

As for her counts, I think I'd ask her doctor what to do instead of just raising the dose on your own, especially if she's trying to get off of it.

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Platelet Disorder Support Association

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The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.