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1. You must be a registered website user in order to post and comment. Guests may read only.
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13 years 3 months ago #30081 by 1BruisedBanana
New To The Group.... was created by 1BruisedBanana
Just wanted to say 'Hi' to everyone....My name is Josh and Ive had ITP since age 2 and am now 38...its great to see a group where we can help each other work through our issues together. Looking forward to being a productive member...Have a Great Day!

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13 years 3 months ago #30110 by Kim081
Replied by Kim081 on topic New To The Group....
Hi Josh and welcome,
I'm fairly new to this board since it hasn't been quite a year since I was diagnosed. I am coming up on a year next month. I've often wondered the ones who have have had ITP for many years how their ITP has been. How often do you get treated? Have you been in remission many years? Do you mind sharing? As of right now for me I have tried Prednisone and Rituxan. I finished my Rituxan treatments last April and so far my platelets have been normal ever since. My internist was the one that found the ITP and she keeps mentioning that she hopes this is only a one time thing. (yeah don't we all hope for this). Don't we all wish this would just go away?

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13 years 3 months ago #30122 by sybille13
Replied by sybille13 on topic New To The Group....
Hi Josh, my name is Pascale and it's my firt time on a forum (I'm totally new technologies' has been...) and I'm French...I answer you because I had ITP since I'm 2 and half, and I'm now 46. I'd like to share experience of treatments, life with ITP and so on, with you, as we have almost the same number of years with ITP. The website is fabulous, full with so precious informations and stories, a great help.
Pascale

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13 years 3 months ago #30160 by KayL
Replied by KayL on topic New To The Group....
Hi Josh!

Hope all is going well for you.

You (and Pascale) are going to have to tell us more about your story! I'd love to know how often you monitor your ITP, if you're in remission, what treatments worked over the years, DO YOU STILL HAVE YOUR SPLEEN?!?!?! lol

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Platelet Disorder Support Association

Platelet Disorder Support Association
8751 Brecksville Road Suite 150
Cleveland, OH 44141
440.746.9003  |  pdsa@pdsa.org
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IMPORTANT!

The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.