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advice plllease

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13 years 4 months ago #29803 by terralynn06
advice plllease was created by terralynn06
So my itp is back had it as a kid middle of nov it was back had an ivig treatment and my platelets went from 20000 to 260000 great in the first week they were down to 96000 then 47000 then 40000 and this week thry are 52000 not sure what this means since they rose by themselves advice please

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  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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13 years 4 months ago #29804 by Sandi
Replied by Sandi on topic advice plllease
Terra:

There is no explanation other than if counts can go down, they can also go up. It doesn't mean much, probably just that there were less antibodies destroying platelets or better platelet production that day. Counts fluctuate constantly, and can rise as easily as they can drop.

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13 years 4 months ago #29805 by terralynn06
Replied by terralynn06 on topic advice plllease
Thank u i was scared of that awnser lol i was hoping i was outta the woods since they have not risen by themselves this time at all

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13 years 4 months ago #29806 by Bunnie
Replied by Bunnie on topic advice plllease
On the flip side it could mean your stablizing in a safe range for a while. I won't worry until you have to. I held at 50-60K for 15 years before I had to treat.
"I am an old man and have known a great many troubles, but most of them have never happened.\" — Mark Twain\\\\\\"Worry is a misuse of the imagination.\" — Dan Zadra

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  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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13 years 4 months ago #29807 by Sandi
Replied by Sandi on topic advice plllease
Well, IVIG is usually just a temporary solution, so drops are almost bound to happen. There are treatments that can lead to remission.

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Platelet Disorder Support Association

Platelet Disorder Support Association
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IMPORTANT!

The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.