itp and fibromyalgia

anyone else with itp been diagnosed with fibromyalgia?

I was diagnosed with fibromyalgia long before my ITP diagnosis.

are you taking any medications for the fibro? has it affected your platelet count?

I have ITP and myalgia, but it is inflammation due to Lupus. Similar though. Supposedly, steroids do not help fibromyalgia, but they do help Lupus myalgia. Two things I have found that help both is magnesium and Guaifenesin. I noticed after taking them that they seemed to relax the muscles and when I looked it up, they are considered to be valid treatments. It took about 1,000 mg's of magnesium to make a difference. It didn't last long, but it took the edge off. Guaifenesin is the ingredient in Mucinex. It gave me jitters after 2 or 3 days, so I had to use that sparingly.

I have had many scripts over the years...Cymbalta, Lyrica, Celebrex and a ton of others. Lyrica was magic until 2 weeks later when the side effects hit. I have not found anything that really works without intolerable side effects. Cold weather is a killer!

Me? No, I'm not on any med for it. I was prescribed pain killers, but unless it was really bad, didn't take them. I was diagnosed with ITP after a hysterectomy in 2004.

And for me, the pred did help with all the pain issues I had with the fibro and RLS (restless leg syndrome). Been off the pred now for a couple of years, and the pain is back. I just try to deal with it the best I can.

We lost our 11 1/2 year old dog back in Oct. and a week later I fell down a cliff and pulled some ligaments in my knee so that took my mind off the other stuff. That's finally starting to feel better. Was on anti-inflammatories and for a while they helped. The pain med I have is highly addicting, so I only take them when the pain is too bad for the Tylenol to work.

Sorry to hear about your dog and hope your leg is healing

I was on pref to treat my top and it helped until I got below 50 mg but I refuse to stay on it b/c of the weight gain. So far cymbals is working just fear it is causing my platelets to drop

yes primarily due to prednisone induced myopathy so my dr gave me Mobic.

Yes, my fibromyalgia started after I had been on prednisone for several months. That was in 2005 and I have had both fibro and itp since then. In sept I was put on elavil for migraines it is a low dose 20mg and the fibro is not all gone but is MUCH better.

I tried Elavil for a while. It didn't do anything. I stopped taking it.

And for me, no the elavil did not make any difference to platelet

thanks everyone....the past few weeks have been miserable for me. its hard taking care of my family with fibro and cfs especially when my platelets are low...but oh well

Can you get someone to help you out? Getting some extra rest and especially at least 8 hrs sleep is so important for you. Do you have a friend, neighbor, relative who could help? And don't feel bad to ask for help as it makes the other person feel good too.


Dru