Remember Me     Forgot Login?   Sign up   •  Web site Help & Info

!!! DISCUSSION GROUP RULES !!!

1. You must be a registered website user in order to post and comment. Guests may read only.
2. Be kind and helpful, not rude and cynical.
3. Don't advertise or promote anything. You will be banned from the group.
4. Report problems to the moderators. THANK YOU!

Can ITP be... really Cured??

More
13 years 5 months ago - 13 years 5 months ago #29518 by nehz20
Can ITP be... really Cured?? was created by nehz20
I have read some articles..where it was written that ITP can't be cured but many a time platelet counts become normal after medication....it also depends on your life style and what you eat....

I was really wondering, for ITP patients like us...what can be done to keep the platelet counts in control.....will changing the lifestyle like taking less stress, changing eating habits etc can really help??

Please Log in or Create an account to join the conversation.

  • Sandi
  • Offline
  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
More
13 years 5 months ago #29521 by Sandi
Replied by Sandi on topic Can ITP be... really Cured??
The word 'cure' isn't really used with ITP since there is no cure for autoimmune disorders. ITP can be managed and remissions can occur.

Most people find that diet and lifestyle change does not make a difference, but some claim that it does. At any rate, leaning toward a healthier way of life certainly can't hurt. It is all trial and error; there is no proven method that works for everyone.

Please Log in or Create an account to join the conversation.

More
13 years 5 months ago #29548 by nehz20
Replied by nehz20 on topic Can ITP be... really Cured??
Thanks Sandi ....is there any way to control it...i am trying my level best to change my life style....i have changed my eating habits...trying to reduce the work pressure...i dont know how much it will be useful...but till the time i am on medication... platelet counts will be fine....but what after medication.....i am still in dilemma...!!

Please Log in or Create an account to join the conversation.

  • Sandi
  • Offline
  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
More
13 years 5 months ago #29549 by Sandi
Replied by Sandi on topic Can ITP be... really Cured??
Then you are in the same boat as everyone else. There is no tried and true way to control ITP. It's trial and error with natural methods and you could say the same about conventional treatments.

Please Log in or Create an account to join the conversation.

More
13 years 1 month ago #31406 by MDgal
Replied by MDgal on topic Can ITP be... really Cured??
I believe autoimmune diseases can be cured. When you address the reason behind why the body got into confusion and started attacking itself in the first place, autoimmune diseases go away. I have seen ITP and other autoimmune diseases leave people that took the natural route to balance their immune system, by adjusting their diet and detoxing from heavy metal poisonning and other things. I am in the process of doing that and boy is it a lot of work but I am slowly seeing results and my energy levels are up. It is too soon to post what I am doing yet but I'll be sure to provide details when I become a success story :-)

"With man this is impossible, but not with God; all things are possible with God." - Matthew 19:26

Please Log in or Create an account to join the conversation.

More
13 years 1 month ago #31412 by eklein
Replied by eklein on topic Can ITP be... really Cured??
Where did you see ITP leave people that took the natural route to balance their immune system?
Erica

And she was!
Diagnosed May 2005, lowest count 8K.
4/22/08: 43K (2nd Rituxan)
10/01/09: 246K, 1/8/10: 111K, 5/21/10: 233K
Latest count: 7/27/2015: 194K

Please Log in or Create an account to join the conversation.

More
13 years 1 month ago #31413 by vaughanderek
Replied by vaughanderek on topic Can ITP be... really Cured??
If only there was a " cure " for itp there would be a very long queue for that pathway and I am very sure that would apply to all the other autoimmune disorders. Until then we just plod along getting treatments to have a " normal" life using the minimal amounts of drugs with the least toxic effects and having healthy diets which suit us.I agree with Sandi that "cure" is not appropriate for ITP.
Derek

Please Log in or Create an account to join the conversation.

  • Sandi
  • Offline
  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
More
13 years 1 month ago #31415 by Sandi
Replied by Sandi on topic Can ITP be... really Cured??
The problem is that the 'natural route' is going to be defined differently by everyone, unless you are saying that your natural route is the only way to go. Not everyone sees results from trying different things, but I'm sure that some do.

Trying to eliminate foods from diet is very trial and error and takes time. It's hard to even know where to start.

I don't think it's fair to state that all autoimmune disorders can be cured. That's pretty much like telling someone in a wheel chair due to MS that they just didn't do enough for themselves. Sometimes, no matter what you do, it doesn't help.

Please Log in or Create an account to join the conversation.

  • alicein
More
13 years 1 month ago - 13 years 1 month ago #31419 by alicein
Replied by alicein on topic Can ITP be... really Cured??

Sandi wrote: The problem is that the 'natural route' is going to be defined differently by everyone, unless you are saying that your natural route is the only way to go. Not everyone sees results from trying different things, but I'm sure that some do.

Trying to eliminate foods from diet is very trial and error and takes time. It's hard to even know where to start.

I don't think it's fair to state that all autoimmune disorders can be cured. That's pretty much like telling someone in a wheel chair due to MS that they just didn't do enough for themselves. Sometimes, no matter what you do, it doesn't help.


Well, I will agree with MD Gal. Autoimmune disorders CAN be healed. The body was made to heal when we give it what it needs. After seeing all I've seen I completely reject the idea the body can't be healed. I've seen people heal their bodies of cancer that was supposedly "incurable" to autoimmune diseases that can't possibly be made to go away. None of them with drugs. Yes, ITP can be cured.

I actually know someone with MS and you know why they aren't cured? Because they refused to believe anyone but their doctor and have accepted they can't be cured. And he's married to a nurse who has told him he's not curable as well. So yep, it usually falls on the shoulders of the person with the disease. And sometimes, by the time a person figures out there is a way to heal the body, their disease is too far gone (I mean close to death) to have the time for healing to occur. And sometimes people exhaust all medical means and turn to the natural but the damage done by the drugs they took is too difficult for the body to overcome. We CAN heal, but you can't abuse the heck out of your body and expect it to respond quickly, or in some cases at all. So yea, healing is dependent on what a person does all along the road they take. No decision is without consequences.

I wholeheartedly reject the idea that we can't heal the body. The problem is we are a society that will only accept certain treatments as "acceptable." And in the end, that is each person's choice. But no one else should be kept from doing what they want to do towards healing - and today, those that choose to use natural medicine often have a difficult time finding it because of a medical world that has done its very best to discredit it.

So, can the body heal from an autoimmune disease? Yes. Does it work for everyone? No. Then again, neither do the drugs. Both are dependent on the state of a person's body when they go into treatment and how faithful they are with treatment.

Please Log in or Create an account to join the conversation.

  • Sandi
  • Offline
  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
More
13 years 1 month ago #31430 by Sandi
Replied by Sandi on topic Can ITP be... really Cured??
You know I'm trying to help myself. But do I think I can ever be cured? NO.

Don't even tell me that everyone that follows the natural route never dies young due to disease. They can't all live to a ripe old age.

Please Log in or Create an account to join the conversation.

  • april
More
13 years 1 month ago #31432 by april
Replied by april on topic Can ITP be... really Cured??
I think everyone should read or watch the interviews of the remarkable experience of Anita Moorjani, and the insights she gained from her Near Death Experience (NDE). Especially interesting to me is her description of all disease beginning in the energetic field surrounding the body. This needs to be changed in order for the disease to leave the physical body. She had also chosen to go the natural route, having recently watched her dear friend die, essentially from the chemotherapy. Yet, even doing all of this natural protocol, she was dying, all her body organs shut down. But...read and see what happened! There is much, much more on her website, but it would be pages long. I found it fascinating, but also uplifting and hopeful. Please don't dismiss it out of hand, because you think it sounds too "out there". I found her interviews very convincing, and her experiences have been verified and documented by numerous doctors, hospital staff and lab work.


ANITA MOORJANI’S INITIAL ACCOUNT OF HER NDE
anitamoorjani.com/?page_id=159

This is the original NDE description that Anita Moorjani submitted to The Near Death Research Foundation in August 2006. The owner of the site, Dr. Jeffrey Long, an oncologist, contacted Anita within hours of her submitting it, asking follow up questions, which are below the the experience description. Shortly after, this story went viral, spreading to hundreds of thousands of people all over the world via email.

EXPERIENCE DESCRIPTION:

I had end stage cancer (Hodgkin’s Lymphoma), and was being cared for at home. I was connected to an oxygen tank, and had a full time nurse. But on this morning, February 2nd 2006, I did not wake up. I had fallen into a coma. My husband called my doctor who said I needed to be rushed to hospital. The senior oncologist looked at me and told my husband that it was now the end, and that my organs were now shutting down. I would probably not make it beyond the next 36 hours. However, the oncologist said he would do whatever he could but prepared my husband that I would most likely not make it, as my organs were no longer functioning. They determined this because my body started to swell up, and I had open skin lesions. They started me on a cocktail of medication on a drip, and poked me with tubes and pipes for nourishment, drugs and oxygen.

I thought that I was drifting in and out of consciousness during this time, because I was aware of everything that was going on around me. But it was confirmed to me later by my family and the doctors that I was in a coma the whole time. I saw and heard the conversations between my husband and the doctors taking place outside my room, about 40 feet away down a hallway. I was later able to verify this conversation to my shocked husband. Then I actually “crossed over” to another dimension, where I was engulfed in a total feeling of love. I also experienced extreme clarity of why I had the cancer, why I had come into this life in the first place, what role everyone in my family played in my life in the grand scheme of things, and generally how life works. The clarity and understanding I obtained in this state is almost indescribable. Words seem to limit the experience – I was at a place where I understood how much more there is than what we are able to conceive in our 3-dimensional world. I realized what a gift life was, and that I was surrounded by loving spiritual beings, who were always around me even when I did not know it.

The amount of love I felt was overwhelming, and from this perspective, I knew how powerful I am, and saw the amazing possibilities we as humans are capable of achieving during a physical life. I found out that my purpose now would be to live “heaven on earth” using this new understanding, and also to share this knowledge with other people. However I had the choice of whether to come back into life, or go towards death. I was made to understand that it was not my time, but I always had the choice, and if I chose death, I would not be experiencing a lot of the gifts that the rest of my life still held in store. At first, I did not want to come back, because my body was very sick, and I did not want to come back into this body as the organs had already stopped functioning and I had all these open skin lesions. But it seemed that almost immediately, I became aware that if I chose life, my body would heal very quickly. I would see a difference in not months or weeks, but days!

I then started to understand how illnesses start on an energetic level before they become physical. If I chose to go into life, the cancer would be gone from my energy, and my physical body would catch up very quickly. I then understood that when people have medical treatments for illnesses, it rids the illness only from their body but not from their energy so the illness returns. I realized if I went back, it would be with a very healthy energy. Then the physical body would catch up to the energetic conditions very quickly and permanently. I seemed to become aware that this applies to anything, not only illnesses – physical conditions, psychological conditions, etc. I became aware that everything going on in our lives was dependant on this energy around us, created by us. Nothing was real – we created our surroundings, our conditions, etc. depending where this “energy” was at. The clarity I felt around how we get what we do was phenomenal! It’s all about where we are energetically. I somehow knew that I was going to see “proof” of this first hand if I returned back to my body.

It felt as though I was drifting in and out between the two worlds, this physical world and the other side, but every time I drifted into the “other side”, I seemed to go deeper and experienced more “scenes”. There was one where I saw how my life had touched all the people in it – it was sort of like a tapestry and I saw how I affected everyone’s lives around me. There was another scene where I saw my brother on a plane, having heard the news I was dying, coming to see me (this was verified to me as when I started to come round, my brother was there, having just got off a plane). I then saw a glimpse of my brother and me and somehow seemed to understand it was a previous life, where I was much older than him and was like a mother to him (in this life, he is older than me). I saw in that life I was very protective towards him. I suddenly became aware he was on the plane to come and see me, and felt “I can’t do this to him – can’t let him come and see me dead”. Then I also saw how my husband’s purpose was linked to mine, and how we had decided to come and experience this life together. If I went, he would probably follow soon after.

In addition, I seemed to understand that, as tests had been taken for my organ functions (and the results were not out yet), that if I chose life, the results would show that my organs were functioning normally. If I chose death, the results would show organ failure as the cause of death, due to cancer. I was able to change the outcome of the tests by my choice!

I made my choice, and as I started to wake up (in a very confused state, as I could not at that time tell which side of the veil I was on), the doctors came rushing into the room with big smiles on their faces saying to my family “Good news – we got the results and her organs are functioning – we can’t believe it!! Her body really did seem like it had shut down!”

After that, I began to recover rapidly. The doctors had been waiting for me to become stable before doing a lymph node biopsy to track the type of cancer cells, and they could not even find a lymph node big enough to suggest cancer (upon entering the hospital my body was filled with swollen lymph nodes and tumors the size of lemons, from the base of my skull all the way to my lower abdomen). They did a bone marrow biopsy, again to find the cancer activity so they could adjust the chemotherapy according to the disease, and there wasn’t any in the bone marrow. The doctors were very confused, but put it down to me suddenly responding to the chemo. Because they themselves were unable to understand what was going on, they made me undergo test after test, all of which I passed with flying colors, and clearing every test empowered me even more! I had a full body scan, and because they could not find anything, they made the radiologist repeat it again!!!!

Because of my experience, I am now sharing with everyone I know that miracles are possible in your life every day. After what I have seen, I realize that absolutely anything is possible, and that we did not come here to suffer. Life is supposed to be great, and we are very, very loved. The way I look at life has changed dramatically, and I am so glad to have been given a second chance to experience “heaven on earth”.

Please Log in or Create an account to join the conversation.

More
13 years 1 month ago #31434 by tamar
Replied by tamar on topic Can ITP be... really Cured??
Yay, I get to post this link again, because it is relevant to the conversation.

www.sciencebasedmedicine.org/index.php/the-plant-vs-pharmaceutical-false-dichotomy/

Please Log in or Create an account to join the conversation.

  • weirdjack
More
13 years 1 month ago #31463 by weirdjack
Replied by weirdjack on topic Can ITP be... really Cured??
Isn't there a Natural Treatment Methods section here specifically for this sort of 'information'?

This all reminds me of that TV insurance commercial line, "They can't put anything on the internet that isn't true!". :)
.

Please Log in or Create an account to join the conversation.

  • Sandi
  • Offline
  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
More
13 years 1 month ago #31466 by Sandi
Replied by Sandi on topic Can ITP be... really Cured??

weirdjack wrote: Isn't there a Natural Treatment Methods section here specifically for this sort of 'information'?


Jack - there is. But it didn't really start out hat way. May be moved if it keeps going. ;)

Please Log in or Create an account to join the conversation.

More
13 years 1 month ago - 13 years 1 month ago #31491 by MDgal
Replied by MDgal on topic Can ITP be... really Cured??

eklein wrote: Where did you see ITP leave people that took the natural route to balance their immune system?
Erica


Erica, there are plenty of examples. Start by checking the natural section in this forum

"With man this is impossible, but not with God; all things are possible with God." - Matthew 19:26

Please Log in or Create an account to join the conversation.

You’re not alone. We have answers!
Contact PDSA to connect with life altering information, resources and referrals. 440.746.9003 (877.528.3538 toll-free) or pdsa@pdsa.org.

Platelet Disorder Support Association

Platelet Disorder Support Association
8751 Brecksville Road Suite 150
Cleveland, OH 44141
440.746.9003  |  pdsa@pdsa.org
The Platelet Disorder Support Association is a 501(c)3 organization and donations are tax deductible to the fullest extent allowed by law.

IMPORTANT!

The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.