hepatitis and hiv test

today I feel tired about my itp, my platelet went down to 7 and up to now they didnt know the cause of my itp, i negative in lupus now I did the test for hepatitis and HIV which makes me more depressed and paranoid it is very difficult that you dont know what exactly goin on with you, petichae is showing once more luckily I dont have any bleeding, sometimes I have but not excessive one, if anyone go throuh also with this test and share to me it would be a big help, my result is coming after few days and ned to go back to the hospital on thurs, I can think straight right now.

Kent:

Most people never find a cause for ITP. Sometimes there just isn't anything that they can find no matter how many tests are run.

I had the HIV test also when I was diagnosed. It was negative. I didn't really worry about it since I didn't have any risk factors. Sometimes ITP can be the first symptom of Lupus. I tested negative for that too in the beginning but did develop it years later. Most likely, that will not happen to you. Not finding a cause is a good thing; that means you have primary ITP and nothing else is wrong with you.

Try not to worry about it. No point in worrying about something that may never happen.

thanks Sandi,

your words really cheer me up I dont have any risk factor to get those as well but it makes me feel depressed and ofcourse even you know that you dont have that disease it will makes you paranoid sometimes... ITP is not simple I was diagnosed only this june and now Im taking eltrombopag 50mg and prednisolone 10mg ever other day, i feel helpless it was a pick of my career now i dont want this sickness but I cant do anything

No, you can't do anything except try to live as normally as you can and make the best of it. It can be chronic but that does not mean you will never have a remission. They happen all the time.

Well, I'm pretty much in the same situation as you, but with a higher count.

I found out my platet count was low in may (75,000). They told me it could be because of the flu that I just had at that time. That I should get another test in 3 months or so. I did the blood test again in october and I was at 50,000. So they started to search for the correct diagnose, which I still don't know.

At first I had tests for HIV, Hep B, Hep C, and the ANA (which was positive) so then, the tested me again to see if I had lupus, rheumatoid factor and ENA were negative. As well as a biochemical profile and ferritin exam. They were ok as well. Now they asked me for my TSH (thyroid test) which was ok. Tomorrow I have to send the doctor the latest exams (TSH and biochemical profile etc). I'm really sick and tired of going through all of these tests and getting no answers. But from what I've read, it's pretty much what all people with ITP go through.

I do not know if I have ITP because it is only a tentative diagnose and the hemathologist has yet to say what it is (anemia or ITP or whatever). But this forum was the closest thing I found with my symptoms...

But I feel like you, it is annoying not knowing, I feel really anxious every time I have to do more exams, and when they come back ok, I feel a little sad (except with the lupus test), 'cause I think thyroid trouble, just pop a pill and I'll be okay... ITP... a little bit different right.

Try to relax, and try to keep on living your life like you did before

Best of luck!

Some people with ITP and thyroid disorders do not have improved counts by treating the thyroid. They just end up trying to balance two disorders. Most doctors do not spend a lot of time trying to find a "cause" because in most cases, there isn't one. ITP diagnosis protocol does not advocate testing for numerous illnesses. ITP is its own autoimmune disorder and often does not have a cause. Sometimes other medical issues do not show up for years and do not show up at ITP diagnosis. Some people are prone to autoimmune disorders and if you have one, you can be predisposed to acquire others.

The hardest part of the ITP diagnosis is accepting that there is no cause. Everyone goes though this and for some reason we believe there should be a reason and therefore, a fix. It's not that simple and really, you don't want anything else to be wrong with you! Balancing multiple medical issues can be difficult. Some people with ITP also have clotting disorders...they can have serious blood clots even with low counts and need blood thinners. It's more common than you'd think and listening to them, you learn to be thankful that you 'only' have ITP to deal with.

Sometimes it helps to have a different perspective and that is my reason for posting this. It is normal to feel angry and unhappy about having ITP, but it can be manageable and integrated into your life. It's very rarely life threatening, even when counts are low. You can live a normal life span and it's not debilitating. Most people, in time, come to the conclusion that it's mostly just a pain in the butt and not necessarily all that life-altering. You'll get there too.

Ive got the results and it went all negative. my last count was 9, I have some nose bleeding but I able to manage it, I have few gum bleeding as well but Im trying to manage it tru tranexamic acid, I was learning how to manage my life not going to hospital everytime my platelet was down... I guess I will not die for few bleeding and its fine.