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ITP Crash

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13 years 7 months ago #27798 by PARoyer
ITP Crash was created by PARoyer
I haven't been on in a LONG time - my counts have crashed and I am having problems responding to treatment. They tried a platelet transfusion which ended me up in the hospital - put me on decadrone and I am still in the basement (3000) so now yesterday they gave me a shot of nplate (which I had good response to in May of 2011). I will be honest with all of you - I am scarred this time. I looke like someone has just beaten me up. They are talking about trying the IV push (whinro??) that a person can have who doesn't have a spleen. Any comments or encouragement would be appreciated. I honestly don't remember being this scarred before but my doctor retired and there is a new one on the case and he honestly didn't even look at my records before jumping into this. And when I had the reaction to the platelets - well the nurse had walked away without giving me a call bell and I was screaming for help. Not good.

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  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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13 years 7 months ago #27822 by Sandi
Replied by Sandi on topic ITP Crash
There is a good chance that N-Plate will work again, so I'd put some hope in that basket.

Win-Rho is used only for those with a spleen, not without. Are you sure that's what they said?

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Platelet Disorder Support Association

Platelet Disorder Support Association
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IMPORTANT!

The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.