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How to deal with ITP on a daily basis

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13 years 9 months ago #26313 by elowe
How to deal with ITP on a daily basis was created by elowe
I am now a 25-year-old female, diagnosed in Sept. 2011 at age 24 with ITP. I was in the hospital for two weeks and had a splenectomy.
I have have good counts since my Oct. 2011 surgery and haven't had any problems.
I check my body every day for bruises and petechiae, just to be safe.
How do you deal with the worrying on a day-to-day basis that you are going to find bruises and petechiae?

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13 years 9 months ago #26317 by Dean
Replied by Dean on topic How to deal with ITP on a daily basis
You have to stop worrying about it!!! You are having good counts, so do not worry if you are going to find a bruise or petechiae from day to day. Stressing out over this does not help!!! Please try to Relax. If you notice bruising or petechiae, then just go have your counts checked. Do not put the cart before the horse. ;)

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13 years 9 months ago #26323 by Scotto
Replied by Scotto on topic How to deal with ITP on a daily basis
I agree, worrying doesn't help anything. I have been dealing with ITP over 10 yr's now. The bruising and petechiae have been just a way of life, if anything it pulls a red flag that my count has dropped and need to have a cbc done asap. I have been on this N-Plate going on 2 yr's now, it is the only thing that has kept my count above 10k on a steady basis. Before the N-plate I had every treatment possible, the n-plate was a last resort). The only thing I can say is we have to deal with what we are dealt, be it good or bad, it's our decision on how we let it affect our live.

Keep your chin up and walk proud, who cares if some bruising or petechiae is showing, if they do then they don't matter

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  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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13 years 9 months ago #26339 by Sandi
Replied by Sandi on topic Re: How to deal with ITP on a daily basis
Elowe:

I was diagnosed in 1998 and struggled with up and down counts for 7 years, then have had a remission since then. All I can tell you is that you have to tell yourself that if your counts drop, you will deal with it. And you will. I can honestly say that I stopped thinking about it years ago and the thought of a recurrance doesn't faze me a bit. I've been there and I know it's manageable. It's also not the worst thing that can happen, so you have to try to put it into perspective.

Life is too short to spend it worrying about something that might never happen. Even if it does, you'll be okay.

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Platelet Disorder Support Association

Platelet Disorder Support Association
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The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.