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Reoccurrence

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13 years 9 months ago #26175 by Rek
Reoccurrence was created by Rek
I have had ITP for over thirty years and for the most part, had most of the ancient
treatments including prednisone, danazol, vincristine and a spleenectomy.

I have a few relapses over the years as well as a platelet count that skyrocketed to
800K.

My previous relapses did not last very long. It seems as if I am again sliding down
the rabbit hole again since my symptoms Include extreme fatigue and a very sore
stomach.

I really do not know how the ITP is triggered, but I wonder why it is reoccurring
after so many years.

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  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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13 years 9 months ago #26194 by Sandi
Replied by Sandi on topic Re: Reoccurrence
A lot of autoimmune disorders relapse and remit periodically. Just the nature of the beast.

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  • karenr
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  • Diagnosed in 2000, at 59, after being on moderately high doses of NSAIDs for arthritis. Splenectomy and rituxan both failed (2004). Did well on prednisone till summer 2018--then terrible reactions. Promacta since 11-19.
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13 years 9 months ago #26196 by karenr
Replied by karenr on topic Re: Reoccurrence
I've never heard of a sore stomach being a symptom of ITP. What do you mean by a sore stomach?

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13 years 9 months ago #26200 by Dean
Replied by Dean on topic Re: Reoccurrence
Sorry to hear you are sliding down the rabbit hole again. :( I think there are thousands of things that can trigger ITP with in the air we breathe and the food we eat. The fatigue can be very annoying!!! Are you stressing out over this, wich may be causing your sore stomach?

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13 years 9 months ago #26202 by Ann
Replied by Ann on topic Re: Reoccurrence
The only stomach thing I can think of connected with ITP is the helicobacter pylori bacteria. Have you been tested? It just might be the connection.

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Platelet Disorder Support Association

Platelet Disorder Support Association
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IMPORTANT!

The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.