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Alopecia (hair loss)

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13 years 10 months ago #25151 by cloyd915
Alopecia (hair loss) was created by cloyd915
I have noticed a bald patch above my right ear. I have thick black curls but was styling my hair differently when I saw this. Its about the size of a quarter and literally no sign of hair. I showed it to the doctor I work for and she said its called Alopecia when hair falls out in patches like this. I researched it and see that it is a symptom of autoimmune disease. Anyone here have any history of this? From what I understand, these patches may continue to show themselves and I may or may not grow hair back in these spots...Now exactly what a girl wants to hear :unsure:

Diagnosed with ITP 2/7/11
Treating regularly with IVIg
Currently in the low 100's

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13 years 10 months ago - 13 years 10 months ago #25153 by Ann
Replied by Ann on topic Re: Alopecia (hair loss)
You're right it is autoimmune and if autoimmune is in the family then it can show up anywhere but not directly connected with ITP.

My niece has an autoimmune thyroid condition and her daughter has had alopecia totalis meaning no hair on the body at all, almost since birth. So don't let anyone tell you it's due to stress or so because it can't be. She's had her hair grow like a bit of fuzz and fall out again but nothing more. Here's a pic taken last year when she was 3.. you can see the sort of approach they take with it. This was at an arty sort of event. Otherwise she wears hats and scarfs and things but it's up to her what she chooses. I think it's okay to post as it's on the web so open to all anyway.

fotowedstrijd.tntpost.nl/137/fotowedstrijd/foto/?photoId=33918
The following user(s) said Thank You: cloyd915

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13 years 10 months ago #25155 by cloyd915
Replied by cloyd915 on topic Re: Alopecia (hair loss)
wow so it may or may not be related to ITP? I certainly HOPE my hair doesn't all fall out!!! I am unaware of any type of autoimmune disorders in my family, either side then I find myself with this ITP and now alopecia. UGH...do you think this is worth a call to the PCP? Who do I discuss this with and what urgency level do I give it??

BTW, that little girl is adorable! AND if my hair should all fall out, I', totally tattooing me head ;)

Diagnosed with ITP 2/7/11
Treating regularly with IVIg
Currently in the low 100's

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13 years 10 months ago #25156 by Ann
Replied by Ann on topic Re: Alopecia (hair loss)
LOL.. it's no tattoo, just drawn on. But no, it's nothing to do with ITP. Just that you have a propensity to autoimmune disorders and have acquired two. There's nothing can be done about it so it's not an urgent issue. Just mention it to your doctor next time you see them.

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13 years 10 months ago #25168 by eklein
Replied by eklein on topic Re: Alopecia (hair loss)
I have patches of hair loss related to lupus. An enormous bald spot is what sent me to the doctor and led to my ITP diagnosis. It was about the size of a closed fist. Where all that hair went I have no idea. Bottom line is it completely grew back. I wore head scarves for a while. I didn't know if everything would fall out, or if it would grow back, or what. I wondered if I should shave it all off - glad I didn't!
Erica

And she was!
Diagnosed May 2005, lowest count 8K.
4/22/08: 43K (2nd Rituxan)
10/01/09: 246K, 1/8/10: 111K, 5/21/10: 233K
Latest count: 7/27/2015: 194K

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13 years 8 months ago #26671 by cloyd915
Replied by cloyd915 on topic Re: Alopecia (hair loss)
:unsure: I mentioned it to my doctor and like everything else even though the baby is 15 months they tell me it's related to the pregnancy...sigh

Diagnosed with ITP 2/7/11
Treating regularly with IVIg
Currently in the low 100's

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13 years 8 months ago #26720 by Nitin
Replied by Nitin on topic Re: Alopecia (hair loss)
Yes another of autoimmune disease :-(. I had this horrible condition diagnosed in 2001, since than I tried lot of medication, but just as ITP, some med works as long you take them, some wont.
Eventually I stopped all medication and after few years my condition became normal (ie bald spots didnt come back, now almost 2 years).
Never know if its related to my ITP?
Some lesson here for ITP????

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