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ITP & PCOS

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13 years 11 months ago #24647 by RaZr
ITP & PCOS was created by RaZr
Hi ya'll. I am a 26 year old female recently disgnosed with ITP. It is not very bad and my levels usually hang around 50,000. The only bleeding i ever have is in my gums/tongue. (i'm assuming this when my levels secretly drop). I am just curious if any of you also have PCOS. The strange thing is most women with ITP can have very strong and heavy periods. Me on the other hand, i rarley get my period at all. My doctors dont really know how to treat me for either conditon. The ITP is managable so no treatment is necessary and the PCOS is a mystery and is usually treated with metformin ( a drug that helps with Insulin Resistance). I however do not have IR, so they do not know what causes my PCOS. I feel like all my illneses are contraditary and confusing. I guess i am just wondering if anyone else has gone through the same thing? anyone out there with ITP and PCOS???
The following user(s) said Thank You: LWalters1108

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13 years 8 months ago #27124 by LWalters1108
Replied by LWalters1108 on topic ITP & PCOS
I also have ITP and PCOS. I just went to the doctors today to have hormone blood work ordered and I've got treatment #4 of 4 of Rituxin on Friday. I've been reading and researching all I can to see if they are related in anyway. So far nothing. I have seen that Metformin can cause B12 deficiency which can lead to poor platelet production so I am going to stay on B12 and discuss adding metformin.

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  • ilovelucy407
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  • it has been 3 years alreay since my knowledge of my ITP. it took a year but everything is back to normal and on 10-29-12 i gave blood so that i can help somone in the same condition i was in or worse. it is just a good deed that paid off in the short run.
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13 years 8 months ago #27133 by ilovelucy407
Replied by ilovelucy407 on topic ITP & PCOS
I am a 18 year old female. I have suffer from ITp for 3 years. i have a touvh of PCOS, it being treated with Metformin and birth control.I have clue how I ended up with it but I just have to live with it now.
The following user(s) said Thank You: Diana68

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Platelet Disorder Support Association

Platelet Disorder Support Association
8751 Brecksville Road Suite 150
Cleveland, OH 44141
440.746.9003  |  pdsa@pdsa.org
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IMPORTANT!

The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.